Evidence map›Paper›PMID 35308098›Full record

ArticleResearch and practice in thrombosis and haemostasis2022

First experience of a hemophilia monitoring platform: florio HAEMO.

Ester Zapotocka, Angelika Batorova, Ernest Bilic, Ana Boban, Carmen Escuriola Ettingshausen, Barbara Faganel Kotnik, Radomira Hrdlickova, Pawel Laguna, Jan Machal, Laszlo Nemes and 3 more

Open access · goldAbstract read
In one paragraph

Article in Research and practice in thrombosis and haemostasis, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.1field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 8 citations in OpenAlex.

  1. Article
  2. Review
  3. florioAdvances in therapy · 2024
    Article
  4. First experience of a hemophilia monitoring platform: florio HAEMO.Research and practice in thrombosis and haemostasis · 2022
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 12 institutions in 8 countries.

Ester ZapotockaDepartment of Pediatric Hematology/Oncology University Hospital Motol 2nd Faculty of Medicine Charles University Prague Czech Republic.
Angelika BatorovaNational Hemophilia Center Department of Hematology and Transfusion Medicine Faculty of Medicine of Comenius University and University Hospital Bratislava Slovakia.
Ernest BilicDepartment of Pediatrics Division of Hematology and Oncology University Hospital Center Zagreb Zagreb Croatia.
Ana BobanDivision of Hematology Department of Internal Medicine University Hospital Center Zagreb School of Medicine University of Zagreb Zagreb Croatia.ORCID https://orcid.org/0000-0003-3532-2336
Carmen Escuriola EttingshausenHZRM Hamophilie Zentrum Rhein Main Mörfelden-Walldorf Germany.
Barbara Faganel KotnikDepartment of Hematology and Oncology University Children's Hospital University Medical Center Ljubljana Ljubljana Slovenia.
Radomira HrdlickovaBlood Center University Hospital Ostrava Ostrava Czech Republic.
Pawel LagunaDepartment of Pediatrics, Hematology, and Oncology Warsaw Medical University Warsaw Poland.
Jan MachalDepartment of Pediatric Hematology and Biochemistry Masaryk University and University Hospital Brno Brno Czech Republic.
Laszlo NemesMedical Center of Hungarian Defense Forces Budapest Hungary.
Irena Preloznik ZupanDepartment of Hematology University Medical Center Ljubljana Faculty of Medicine University of Ljubljana Ljubljana Slovenia.
Gediminas PurasSwedish Orphan Biovitrum AG Basel Switzerland.
Marianna ZomboriHemato-oncology Unit Heim Pal Children's Hospital Budapest Hungary.
University Hospital Centre Zagreb · HRCharles University · CZHeim Pál Országos Gyermekgyógyászati Intézet · HULjubljana University Medical Centre · SIMasaryk University · CZMedical University of Warsaw · PLRheinmetall (Switzerland) · CHSwedish Orphan Biovitrum (Switzerland) · CHUniversity Hospital Bratislava · SKUniversity Hospital Ostrava · CZUniversity of Ljubljana · SIZrínyi Miklós National Defence University · HU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web-based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real-time pharmacokinetic factor level estimation. Objectives: To assess intuitiveness, ease-of-use, and patient preference of florio HAEMO in Central Europe using a cross-sectional survey. Methods: This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021. The online questionnaire included 17 questions about overall satisfaction, ease-of-use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEMO app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician. Results: Sixty-six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them. Conclusions: This survey suggests that florio HAEMO is an easy-to-use and intuitive app to assist self-management of home prophylaxis.

Indexed as

hemophiliapatient preferencepharmacokineticstelemedicine

Identifiers

PMID35308098
PMCPMC8918679
OpenAlexW4221080732

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.