Evidence map›Paper›PMID 35304399›Full record

ArticleBMJ open2022

Identifying children with medical complexity in administrative datasets in a Canadian context: study protocol.

Holly McCulloch, Sydney Breneol, Samuel A Stewart, Sandra Magalhaes, Mari Somerville, Jordan Sheriko, Shauna Best, Stacy Burgess, Elizabeth Jeffers, Mary-Ann Standing and 3 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.5field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 2 citations in OpenAlex.

  1. Article
  2. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 4 institutions in 1 country.

Holly McCullochChildren's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada.ORCID 0000-0002-5793-5531
Sydney BreneolSchool of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada.ORCID 0000-0001-6709-2577
Samuel A StewartFaculty of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada.
Sandra MagalhaesNB Institute for Research, Data and Training, University of New Brunswick, Fredericton, New Brunswick, Canada.
Mari SomervilleSchool of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada.ORCID 0000-0002-4699-7278
Jordan SherikoPediatrics, IWK Health Centre, Halifax, Nova Scotia, Canada.
Shauna BestChildren's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada.
Stacy BurgessChildren's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada.
Elizabeth JeffersMaritime SPOR SUPPORT Unit, Halifax, Nova Scotia, Canada.
Mary-Ann StandingCentre for Health and Community Research, University of Prince Edward Island, Charlottetown, Prince Edward Island, Canada.
Sarah KingChildren's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada.
Julie CleggChildren's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada.
Janet A CurranSchool of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada jacurran@dal.ca.ORCID 0000-0001-9977-0467
Izaak Walton Killam Health Centre · CADalhousie University · CAUniversity of New Brunswick · CAUniversity of Prince Edward Island · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionChildren with medical complexity and their families are an important population of interest within the Canadian healthcare system. Despite representing less than 1% of the paediatric population, children with medical complexity require extensive care and account for one third of paediatric healthcare expenditures. Opportunities to conduct research to assess disparities in care and appropriate allocation of health resources relies on the ability to accurately identify this heterogeneous group of children. This study aims to better understand the population of children with medical complexity in the Canadian Maritimes, including Nova Scotia (NS), New Brunswick (NB) and Prince Edward Island (PEI). This will be achieved through three objectives: (1) Evaluate the performance of three algorithms to identify children with medical complexity in the Canadian Maritimes in administrative data; then using the 'best fit' algorithm (2) Estimate the prevalence of children with medical complexity in the Canadian Maritimes from 2003 to 2017 and (3) Describe patterns of healthcare utilisation for this cohort of children across the Canadian Maritimes. METHODS AND ANALYSIS: The research will be conducted in three phases. In Phase 1, an expert panel will codevelop a gold-standard definition of paediatric medical complexity relevant to the Canadian Maritime population. A two-gate validation process will then be conducted using NS data and the gold-standard definition to determine the 'best fit' algorithm. During phase 2 the 'best fit' algorithm will be applied to estimate the prevalence of children with medical complexity in NS, NB and PEI. Finally, in phase 3 will describe patterns of healthcare utilisation across the Canadian Maritimes. ETHICS AND DISSEMINATION: Ethics approval for this protocol was granted by the institutional research ethics board at the IWK Health Centre (REB # 1026245). A waiver of consent was approved. This study will use an integrated knowledge translation approach, where end users are involved in each stage of the project, which could increase uptake of the research into policy and practice. The findings of this research study will be submitted for publication and dissemination through conference presentations and with our end users.

Indexed as

Delivery of Health CarePatient Acceptance of Health CareChildCohort StudiesHumansNova Scotiaclinical audithealth informaticspaediatrics

Identifiers

PMID35304399
PMCPMC8935171
OpenAlexW4220959806

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.