ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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Who cites it
8 citing papers in PubMed, 19 citations in OpenAlex.
- The Autistic Parenting Journey: A Systematic Review of Qualitative Evidence and Thematic Meta-Synthesis.Autism in adulthood · 2026Article
- Between neuroaffirmation and access: Parents' experiences of autism caregiving in England.PloS one · 2026Article
- A Cross-Sectional Analysis of the Social Determinants of Health (SDOH) Needs in Early Childhood Among Children at Risk and Diagnosed With Autism Spectrum Disorder.Journal of autism and developmental disorders · 2025Article
- Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships.Autism : the international journal of research and practice · 2024Article
- Parents' experiences of parenting a child with profound intellectual and multiple disabilities in France: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Parental satisfaction with the quality of services provided to persons with autism spectrum disorder and their families in Saudi Arabia.Frontiers in psychiatry · 2024Article
- Lived Experiences of Iranian Parents of Children with Autism Spectrum Disorder: A Systematic Review.Iranian journal of public health · 2023Review
- Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
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Authors and funding
11 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSupport, such as information, advice and therapies, can play a vital role in the lives of families of autistic children. However, little is known about the support experiences of UK parents and carers.
aimTo explore experiences of and access to support for families of children with autism and sensory processing difficulties, from the perspective of parents and carers.
methodsSemi-structured, timeline-assisted interviews were conducted with parents/carers of 30 children aged 5-11, exploring experiences of support. Framework analysis was used to identify themes in the interview data.
resultsSupport varied widely and was not accessed equitably. Specialist autism support, together with support from other parents and voluntary organizations, was perceived as more useful than statutory and nonspecialist provision. Unmet support needs included an ongoing point of contact for information and advice for parents, and access to direct therapy and specialist mental health provision for children.
conclusionsFindings emphasize the need for a clear pathway of support following autism diagnosis, autism-specific training for professional service providers and specialist provision tailored to the needs of autistic children. PATIENT OR PUBLIC CONTRIBUTION: An advisory group of four parents of children with autism provided feedback on study procedures and materials, including participant information sheets and timeline completion instructions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.