Evidence map›Paper›PMID 35297133›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2022

The socioemotional challenges and consequences for caregivers of Aboriginal and Torres Strait Islander children with otitis media: A qualitative study.

Letitia Campbell, Jennifer Reath, Wendy Hu, Hasantha Gunasekera, Deborah Askew, Chelsea Watego, Kelvin Kong, Robyn Walsh, Kerrie Doyle, Amanda Leach and 2 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
4.0field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 22 citations in OpenAlex.

  1. Trial
  2. Trial
  3. Article
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  6. The socioemotional challenges and consequences for caregivers of Aboriginal and Torres Strait Islander children with otitis media: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 8 institutions in 1 country.

Letitia CampbellKalwun Development Corporation, Gold Coast, Australia.ORCID 0000-0003-3440-7864
Jennifer ReathDepartment of General Practice, School of Medicine, Western Sydney University, Penrith, Australia.
Wendy HuDepartment of General Practice, School of Medicine, Western Sydney University, Penrith, Australia.ORCID 0000-0002-1711-3808
Hasantha GunasekeraFaculty of Medicine and Health, University of Sydney, New South Wales, Australia.
Deborah AskewPrimary Care Clinical Unit, School of Clinical Medicine, The University of Queensland, Brisbane, Australia.
Chelsea WategoSchool of Public Health and Social Work, Faculty of Health, Queensland University of Technology, Brisbane, Australia.
Kelvin KongSchool of Medicine and Public Health, College of Health, Medicine and Wellbeing, University of Newcastle, Newcastle, Australia.
Robyn WalshDepartment of General Practice, School of Medicine, Western Sydney University, Penrith, Australia.
Kerrie DoyleDepartment of General Practice, School of Medicine, Western Sydney University, Penrith, Australia.
Amanda LeachChild Health Division, Menzies School of Health Research, Casuarina, Australia.
Claudette TysonSouthern Queensland Centre of Excellence in Aboriginal and Torres Strait Islander Primary Health Care (Inala Indigenous Health Service), Metro South Health, Brisbane, Australia.
Penelope AbbottDepartment of General Practice, School of Medicine, Western Sydney University, Penrith, Australia.
Western Sydney University · AUGold Coast City Council · AUMenzies School of Health Research · AUMetro South Health · AUQueensland University of Technology · AUThe University of Queensland · AUThe University of Sydney · AUUniversity of Newcastle Australia · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionLiving with ear disease can have extensive impacts on physical, emotional and social well-being. This study explored otitis media (OM) and its management from the perspective of caregivers of Aboriginal and Torres Strait Islander children.

methodsSemi-structured interviews were conducted from 2015 to 2020 with caregivers of Aboriginal and Torres Strait Islander children with OM. Thematic analysis of transcripts was undertaken using a constructivist grounded theory approach through the leadership and the cultural lens of an Aboriginal community-based researcher.

resultsCaregivers described OM as having profound impacts on their child's physical, developmental, and emotional well-being, with long waits for specialist treatment contributing to extra strain on families. Children's well-being suffered when OM was mistaken for poor behaviour and children were punished, with caregivers subsequently experiencing strong feelings of guilt. Concerns were conveyed about the social implications of having a sick child. The variable nature of OM symptoms meant that caregivers had to monitor closely for sequelae and advocate for appropriate treatment. Success in navigating the diagnosis and treatment of OM can be strongly impacted by the relationship between caregivers and health professionals and the perceived access to respectful, collaborative and informative healthcare.

conclusionOM may have substantial social and emotional consequences for children and their caregivers. A holistic understanding of the way in which OM impacts multiple facets of health and well-being, as well as recognition of challenges in accessing proper care and treatment, will aid families managing OM and its sequelae. PATIENT OR PUBLIC CONTRIBUTION: Governing boards, managers, staff and community members from five Australian Aboriginal Medical Services were involved in the approval, management and conduct of this study and the wider clinical trials. The caregivers of Aboriginal and Torres Strait Islander patients at these services informed the interview study and guided its purpose.

Indexed as

Otitis MediaAustraliaCaregiversChildHumansQualitative ResearchAboriginal and Torres Strait Islander Healthchild healthdelivery of healthcarehearing lossotitis media

Identifiers

PMID35297133
PMCPMC9327870
OpenAlexW4220922738

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.