Evidence map›Paper›PMID 35296246›Full record

ArticleBMC geriatrics2022

Family caregivers' perspectives on their interaction and relationship with people living with dementia in a nursing home: a qualitative study.

Charlotte T M van Corven, Annemiek Bielderman, Peter L B J Lucassen, Hilde Verbeek, Ivonne Lesman-Leegte, Marja F I A Depla, Annerieke Stoop, Maud J L Graff, Debby L Gerritsen

Open access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
2.1field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 15 citations in OpenAlex.

  1. Observational
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 1 country.

Charlotte T M van CorvenDepartment of Primary and Community Care, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands. charlotte.vancorven@radboudumc.nl.
Annemiek BieldermanDepartment of Primary and Community Care, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands.
Peter L B J LucassenDepartment of Primary and Community Care, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the Netherlands.
Hilde VerbeekDepartment of Health Services Research, Living Lab in Ageing and Long-Term Care, Care and Public Health Research Institute, Maastricht University, Maastricht, the Netherlands.
Ivonne Lesman-LeegteDepartment of General Practice and Elderly Care Medicine, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
Marja F I A DeplaDepartment of Medicine for Older People, Amsterdam Public Health Research Institute (APH), Amsterdam UMC, VU University Medical Center, Amsterdam, The Netherlands.
Annerieke StoopDepartment Tranzo, Scientific Center for Care and Welfare, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands.
Maud J L GraffScientific Institute for Quality of Healthcare and Department of Rehabilitation, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands.
Debby L GerritsenDepartment of Primary and Community Care, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands.
Radboud University Nijmegen · NLRadboud University Medical Center · NLAmsterdam UMC Location VUmc · NLMaastricht University · NLTilburg University · NLUniversity of Groningen · NL

Funding

Dutch Alzheimer Society 733050832The Netherlands Organization for Health Research and Development (ZonMw) 733050832
6 · The paper itself

Abstract

backgroundSocial interactions are important for people living with dementia in a nursing home. However, not much is known about interactions and relationships between residents and family caregivers and related experiences of family caregivers. We aim to advance the knowledge on how family caregivers interact with people living with dementia in a nursing home and how they maintain or redesign a meaningful connection.

methodsQualitative research using interviews with family caregivers (n = 31) to explore perspectives on their interaction and relationship with the person living with dementia. Interviews were held during the reopening of nursing homes after the first COVID-19 lockdown in the Netherlands. In this situation, family caregivers became more aware of their interaction and relationship with the resident, which provided a unique opportunity to reflect on this. The interviews explored the interaction and relationship in a broad sense, not specifically for the COVID-19 situation. Thematic analysis was performed to analyze the data.

resultsWe were able to identify three key themes reflecting the experiences of family caregivers: (1) changes in the interaction and relationship, (2) strategies to promote connection, and (3) appreciation of the interaction and relationship. From the viewpoint of family caregivers, the interaction and relationship are important for both the resident living with dementia and for themselves, and family caregivers have different strategies for establishing a meaningful connection. Nevertheless, some appear to experience difficulties with constructing such a connection with the resident.

conclusionsOur results provide a basis for supporting family caregivers in perceiving and establishing mutuality and reciprocity so that they can experience togetherness.

Indexed as

COVID-19DementiaCaregiversCommunicable Disease ControlHumansNursing HomesQualitative ResearchDementiaFamily caregiversNursing homesPsychosocial supportSocial interaction

Identifiers

PMID35296246
PMCPMC8924349
OpenAlexW4221008753

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.