ArticleScientific reports2022
An Aotearoa New Zealand survey of the impact and diagnostic delay for endometriosis and chronic pelvic pain.
Article in Scientific reports, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 2 of them syntheses that pooled it.
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Who cites it
27 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Time to Diagnose Endometriosis: Current Status, Challenges and Regional Characteristics-A Systematic Literature Review.BJOG : an international journal of obstetrics and gynaecology · 2025Pooled it
- Psychosocial factors associated with pain and health-related quality of life in Endometriosis: A systematic review.European journal of pain (London, England) · 2022Pooled it
- The association between dietary acid load and endometriosis: a case-control study.BMC women's health · 2026Article
- The role of tumor necrosis factor alpha in regulating CYFRA 21-1 as a potential biomarker for endometriosis: A cross-sectional study.International journal of reproductive biomedicine · 2026Article
- Nursing care for patients with endometriosis in Aotearoa New Zealand: a survey study.Journal of research in nursing : JRN · 2026Article
- Profiling Relationships Between Abdominal Pain, Gastrointestinal Symptoms and Pelvic Pain Bothersomeness in Young Females.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Observational
- Perceived impact of medicinal cannabis on pelvic pain and endometriosis related symptoms in Aotearoa New Zealand: an observational cohort study.BMC complementary medicine and therapies · 2026Observational
- Nursing-led education and its impact on knowledge, self-care practices, and pain intensity in women with endometriosis.Frontiers in public health · 2026Article
- Endometriosis healthcare access in Indonesia based on the Indonesian national health insurance data in 2020-2023.Reproduction & fertility · 2026Article
- Shortening the Endometriosis Diagnostic Pathway: A Narrative Review and Research Agenda.International journal of women's health · 2026Review
- Insights from focus groups with trans and gender-diverse people with endometriosis: stories you tell, stories you don't.Sexual and reproductive health matters · 2025Article
- 'I Wish I Fought for Myself More Instead of Just Letting Doctors Dismiss Me': A Combined Qualitative Analysis of Four Cohorts of Aotearoa New Zealand Endometriosis Patients.The Australian & New Zealand journal of obstetrics & gynaecology · 2025Article
- 'The Difficulty of Diagnosis Compromises Patient Care for People With Endometriosis': Interview Study With Aotearoa New Zealand General Practitioners.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Mathematical modelling of macrophage and natural killer cell immune response during early stages of peritoneal endometriosis lesion onset.Journal of the Royal Society, Interface · 2025Article
- Investigating racial disparities in drug prescriptions for patients with endometriosis.npj women's health · 2025Article
- Research priorities of endometriosis patients and supporters in Aotearoa New Zealand.The Australian & New Zealand journal of obstetrics & gynaecology · 2024Article
- Survey of General Practitioner Perspectives on Endometriosis Diagnosis, Referrals, Management and Guidelines in New Zealand.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Supportive Care Needs of Young Adults With Endometriosis: An Open-Ended Online Survey and Exploration of Unmet Needs.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- A decade to wait: Update on the average delay to diagnosis for endometriosis in Aotearoa New Zealand.The Australian & New Zealand journal of obstetrics & gynaecology · 2024Article
- Multichannel mapping of in vivo rat uterine myometrium exhibits both high and low frequency electrical activity in non-pregnancy.Scientific reports · 2024Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Chronic pelvic pain (CPP) causes important negative effects on quality of life. Endometriosis is the most common cause of CPP in females, and diagnostic delay is over six years internationally. Data remain scarce for CPP impact or diagnostic delay in Aotearoa New Zealand. This study used an online survey to explore the impact of CPP on various life domains for those aged over 18. Additionally, for those with an endometriosis diagnosis, diagnostic delay and factors affecting this over time were explored. There were 800 respondent (620 with self-reported endometriosis). CPP symptoms, irrespective of final diagnosis, started prior to age 20 and negatively impacted multiple life domains including employment, education, and relationships. Mean diagnostic delay for those with endometriosis was 8.7 years, including 2.9 years between symptom onset and first presentation and 5.8 years between first presentation and diagnosis. Five doctors on average were seen prior to diagnosis. However, there was a reduction in the interval between first presentation and diagnosis over time, from 8.4 years for those presenting before 2005, to two years for those presenting after 2012. While diagnostic delay is decreasing, CPP, irrespective of aetiology, continues to have a significant negative impact on the lives of those affected.
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