Evidence map›Paper›PMID 35290682›Full record

Observational studySpecial care in dentistry : official publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry2022

Enablers and barriers in dental attendance in Rett syndrome: an international observational study.

Yvonne Yee Lok Lai, Jenny Anne Downs, Kingsley Wong, Sobia Zafar, Laurence James Walsh, Helen Margaret Leonard

Open access · hybridAbstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in Special care in dentistry : official publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.7field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 9 citations in OpenAlex.

  1. qPCR assay optimisation for a clinical study comparing oral health risk in Rett syndrome.European archives of paediatric dentistry : official journal of the European Academy of Paediatric Dentistry · 2024
    Article
  2. Article
  3. Article
  4. Enablers and barriers in dental attendance in Rett syndrome: an international observational study.Special care in dentistry : official publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry · 2022
    Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Yvonne Yee Lok LaiUQ Oral Health Centre, The University of Queensland School of Dentistry, Herston, Australia.ORCID https://orcid.org/0000-0001-9737-1294
Jenny Anne DownsTelethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0001-7358-9037
Kingsley WongTelethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0001-5178-6080
Sobia ZafarUQ Oral Health Centre, The University of Queensland School of Dentistry, Herston, Australia.ORCID https://orcid.org/0000-0001-5551-8147
Laurence James WalshUQ Oral Health Centre, The University of Queensland School of Dentistry, Herston, Australia.ORCID https://orcid.org/0000-0001-5874-5687
Helen Margaret LeonardTelethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0001-6405-5834
The Kids Research Institute Australia · AUThe University of Queensland · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimsIntellectual and developmental disabilities are heterogeneous in aetiology and presentation, and one cannot make assumptions about the oral health barriers of those with Rett syndrome (RTT) based on findings from generic studies. This study investigated caregivers' perceptions regarding access to dental care for those with (RTT), and associations of dental treatments received by those with RTT with their caregivers' perceived value of oral health and perception of their own as well as their daughter's dental anxiety. METHODS AND

resultsRetrospective observational data of a subset of individuals with confirmed MECP2 mutations in the InterRett database (n = 216) were used to explore caregiver-related factors and their relationships with longitudinal data on dental service utilisation, using negative binomial regression. The main reported barriers to dental care access for individuals with RTT were primarily dentist-related in nature, regardless of dental service history. Those with reported dental nonattendance were of older age. Increasing levels of caregiver-reported dental fear were associated with less frequent dental check-ups or for any appointments for affected individuals.

conclusionsDentist-related barriers and caregiver-reported anxiety may both adversely affect dental attendance for those with RTT. Future research should explore caregivers' beliefs and oral health literacy.

Indexed as

Rett SyndromeCaregiversHumansMutationOral HealthRetrospective Studiesdelivery of dental caredevelopmental disabilitiesoral healthRett syndrome

Identifiers

PMID35290682
PMCPMC9790614
OpenAlexW3185311320

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.