SynthesisPalliative medicine2022
Civic engagement in serious illness, death, and loss: A systematic mixed-methods review.
Synthesis in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed.
- Professional and family caregivers' perceptions of death literacy in end-of-life home care: a qualitative study.BMJ open · 2026Article
- Awareness and knowledge of palliative care in Tripoli, Lebanon: A cross-sectional study in a disadvantaged population.Palliative care and social practice · 2026Article
- Associations between sociodemographic factors, experience of death and dying, and death literacy: A nationally representative cross-sectional study.Palliative care and social practice · 2026Article
- Taboo, safe spaces, and death sociability: A comparative ethnography of two compassionate communities.Palliative care and social practice · 2026Article
- Ageing in place in urban environments: building collaborative organisations for later life.European journal of ageing · 2025Review
- Use of sedative drugs in specialist palliative care (iSedPall): a multi-modal intervention pilot study protocol.Pilot and feasibility studies · 2025Article
- Cosmology of belonging: The role of community in the therapeutic use of psychedelics.Palliative & supportive care · 2025Article
- Palliative care training programmes for community volunteers working with children and their families: a scoping review.Frontiers in public health · 2025Article
- Community engagement in public health palliative care: A comparative ethnographic study of two culturally distinct compassionate communities in Canada.Palliative care and social practice · 2025Article
- What knowledge and skills are needed for community volunteers to take on a signposting role in community-based palliative care? A qualitative study.Palliative care and social practice · 2025Article
- Initial steps toward the first Compassionate Community in Italy: A study protocol.Palliative care and social practice · 2025Article
- Assessing and comparing compassionate communities benefits across cities in diverse cultural contexts: a step toward the identification of the most important ones.Palliative care and social practice · 2025Article
- Barriers and drivers of public engagement in palliative care, Scoping review.BMC palliative care · 2024Article
- Non-kin caregivers of terminally ill people: Contributions, experiences, and needs: A protocol for a mixed-methods study.PloS one · 2024Article
- Mapping the ripple effects of a compassionate university for serious illness, death, and bereavement.Palliative care and social practice · 2024Article
- How does community engagement evolve in different compassionate community contexts? A longitudinal comparative ethnographic research protocol.Palliative care and social practice · 2023Article
- Civic Engagement in Neighbourhoods regarding serious illness, death and loss (CEIN): a study protocol for a convergent-parallel mixed-methods process and outcome evaluation that balances control and flexibility.Palliative care and social practice · 2023Article
- Public health palliative care interventions that enable communities to support people who are dying and their carers: a scoping review of studies that assess person-centered outcomes.Frontiers in public health · 2023Article
- Population-level, patient-reported outcomes: a case study regarding a public health intervention that involves patients with life-limiting illnesses.Frontiers in public health · 2023Article
- The compassionate communities connectors program: effect on healthcare usage.Palliative care and social practice · 2023Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundNew public health approaches to palliative care such as compassionate communities aim to increase capacity in serious illness, death, and loss by involving civic society. Civic engagement has been described in many domains of health; a description of the characteristics, processes, and impact of the initiatives in palliative care is lacking.
aimTo systematically describe and compare civic engagement initiatives in palliative care in terms of context, development, impact, and evaluation methods.
designSystematic, mixed-methods review using a convergent integrated synthesis approach. Registered in Prospero: CRD42020180688. DATA SOURCES: Six databases (PubMed, Scopus, Sociological Abstracts, WOS, Embase, PsycINFO) were searched up to November 2021 for publications in English describing civic engagement in serious illness, death, and loss. Additional grey literature was obtained by contacting the first authors. We performed a quality appraisal of the included studies.
resultsWe included 23 peer-reviewed and 11 grey literature publications, reporting on nineteen unique civic engagement initiatives, mostly in countries with English as one of the official languages. Initiatives involved the community in their development, often through a community-academic partnership. Activities aimed to connect people with palliative care needs to individuals or resources in the community. There was a variety of evaluation aims, methods, outcomes, and strength of evidence. Information on whether or how to sustain the initiatives was generally lacking.
conclusionsThis is the first review to systematically describe and compare reported civic engagement initiatives in the domain of palliative care. Future studies would benefit from improved evaluation of impact and sustainability.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.