Evidence map›Paper›PMID 35287496›Full record

ArticlePalliative medicine2022

Development of a research-based classification of approaches to paediatric palliative medicine service provision within children's and young adults' hospices: A mixed methods study.

Jo Frost, Jane Hunt, Jaqui Hewitt-Taylor, Susie Lapwood

Abstract read
In one paragraph

Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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No citing paper in PubMed yet.

4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jo FrostBournemouth University/Children's Hospice South West, UK.ORCID 0000-0003-1486-382X
Jane HuntBournemouth University, Dorset, UK.
Jaqui Hewitt-TaylorBournemouth University, Dorset, UK.
Susie LapwoodHelen House, Oxford, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundGlobally, pioneers in children's palliative care influenced this speciality's development through individual initiatives leading to diverse models of care. Children's and young adults' hospices have now been established around the world. However, service provision varies widely leading to inequities both within countries and internationally.

aimTo describe and classify existing approaches to paediatric palliative medicine in children's and young adults' hospices across the UK.

designA mixed methods study conducted by telephone interview. SETTING/

participantsThirty-one leaders of children's hospice care, representing 28 services, 66% of UK children's and young adults' hospice organisations.

resultsA geographic-specialist classification was developed through integration of findings, enabling hospices to be classified as

conclusionsInternationally, the integration of specialist children's palliative care teams with existing services is a current challenge. Despite differing approaches to children's palliative care world-wide, models of care which facilitate integration of specialist children's palliative care could benefit a range of countries and contexts. The geographic-specialist classification could be used to inform recommendations for a networked approach to paediatric palliative medicine within children's and young adults' hospices to promote equity for children with life-limiting and life-threatening conditions.

Indexed as

Hospice CareHospicesPalliative MedicineChildHumansPalliative CareSpecializationYoung AdultchildHospicespalliative carepalliative medicineyoung adult

Identifiers

PMID35287496
PMCPMC9087311

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.