Evidence map›Paper›PMID 35282598›Full record

ReviewThe lancet. Healthy longevity2022

Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles.

Jennifer Kirsty Burton, Arne Timon Wolters, Ann-Marie Towers, Liz Jones, Julienne Meyer, Adam Lee Gordon, Lisa Irvine, Barbara Hanratty, Karen Spilsbury, Guy Peryer and 6 more

Abstract readReview
In one paragraph

Review in The lancet. Healthy longevity, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. An Ethnographic Exploration of Social-Ecological Influences on Physical Activity in Care Homes for Older People.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  9. Article
  10. Article
  11. Review
  12. Article
  13. Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Jennifer Kirsty BurtonInstitute of Cardiovascular and Medical Sciences, University of Glasgow, Glasgow Royal Infirmary, Glasgow, UK.
Arne Timon WoltersImprovement Analytics Unit, The Health Foundation, London, UK.
Ann-Marie TowersCentre for Health Services Studies, Cornwallis Central, University of Kent, Canterbury, UK.
Liz JonesNational Care Forum, Coventry, UK.
Julienne MeyerNational Care Forum, Coventry, UK.
Adam Lee GordonUnit of Injury, Inflammation and Recovery Sciences, School of Medicine, University of Nottingham, Derby Medical School, Royal Derby Hospital, Derby, UK.
Lisa IrvineCentre for Research in Public health and Community Care, University of Hertfordshire, Hatfield, UK.
Barbara HanrattyPopulation Health Sciences Institute, Newcastle University, Campus for Ageing and Vitality, Newcastle upon Tyne, UK.
Karen SpilsburySchool of Healthcare, Faculty of Medicine and Health, University of Leeds, Leeds, UK.
Guy PeryerSchool of Health Sciences, University of East Anglia, Norwich Research Park, Norwich, UK.
Stacey RandPersonal Social Services Research Unit (PSSRU), Cornwallis Central, University of Kent, Canterbury, UK.
Anne KillettSchool of Health Sciences, University of East Anglia, Norwich Research Park, Norwich, UK.
Gizdem AkdurCentre for Research in Public health and Community Care, University of Hertfordshire, Hatfield, UK.
Stephen AllanPersonal Social Services Research Unit (PSSRU), Cornwallis Central, University of Kent, Canterbury, UK.
Priti BiswasNorwich Medical School, University of East Anglia, Norwich Research Park, Norwich, UK.
Claire GoodmanCentre for Research in Public health and Community Care, University of Hertfordshire, Hatfield, UK.

Funding

Chief Scientist Office PCL/21/01
6 · The paper itself

Abstract

Reforms to social care in response to the COVID-19 pandemic, in the UK and internationally, place data at the heart of proposed innovations and solutions. The principles are not well established of what constitutes core, or minimum, data to support care home residents. Often, what is included privileges data on resident health over day-to-day care priorities and quality of life. This Personal View argues for evidence-based principles on which to base the development of a UK minimum data set (MDS) for care homes. Co-produced work involving care home staff and older people working with stakeholders is required to define and agree the format, content, structure, and operationalisation of the MDS. Implementation decisions will determine the success of the MDS, affecting aspects including data quality, completeness, and usability. Care home staff who collect the data need to benefit from the MDS and see value in their contribution, and residents must derive benefit from data collection and synthesis.

Indexed as

COVID-19Nursing HomesAgedHumansPandemicsQuality of LifeUnited Kingdom

Identifiers

PMID35282598
PMCPMC8901193

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.