Evidence map›Paper›PMID 35274737›Full record

ArticleJournal of the American Geriatrics Society2022

Perceived dementia risk and advance care planning among older adults.

Yu Kyung Lee, Terri R Fried, Darcé M Costello, Alexandra M Hajduk, John R O'Leary, Andrew B Cohen

Registry-linked trialOpen access · greenAbstract read
In one paragraph

Article in Journal of the American Geriatrics Society, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04922320 (Effect of Patient Priorities Care Implementation in Older Veterans With Multiple Chronic Conditions), which is not on this map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
2.0field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04922320 nacompletednot on this map

Effect of Patient Priorities Care Implementation in Older Veterans With Multiple Chronic Conditions

TypeinterventionalSponsorVA Office of Research and DevelopmentRan2022 to 2025Enrolled420ConditionsMultiple Chronic Conditions, Decision Making, SharedArmsPatient Priorities Care, Usual Care
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 10 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Yu Kyung LeeDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.
Terri R FriedDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.ORCID 0000-0001-8083-8265
Darcé M CostelloDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.
Alexandra M HajdukDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.ORCID 0000-0002-5800-347X
John R O'LearyDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.
Andrew B CohenDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.ORCID 0000-0001-9161-8436
Yale University · US

Funding

Yale Study Support Suite (YES3): Dashboard and Web Portal Software Supporting Research Workflow through integrated, customizable REDCap External ModulesP30AG021342 · NIA · YALE UNIVERSITY · PI Albert C Shaw · 2002 to 2026
$37.9M
Dementia and Decision-Making for Older Adults without SurrogatesK76AG059987 · NIA · YALE UNIVERSITY · PI COHEN, ANDREW B · 2018 to 2022
$1.2M
NIA Short Term Research Training: Students in Health Professional SchoolsT35AG049685 · NIA · YALE UNIVERSITY · PI Sarwat I Chaudhry, Terri R. Fried · 2016 to 2026
$804k
NIA NIH HHS K76 AG059987NIA NIH HHS P30 AG021342NIA NIH HHS T35 AG049685
6 · The paper itself

Abstract

backgroundAlthough advance care planning (ACP) is beneficial if dementia develops, and virtually all older adults are at risk for this disease, older adults do not consistently engage in ACP. Health behavior models have highlighted the importance of perceived susceptibility to medical conditions in motivating behavior. Following these models, we sought to determine how often older adults believe they are not at risk of developing dementia and to examine the association between perceived dementia risk and ACP participation.

methodsWe performed a cross-sectional study of community-dwelling adults without cognitive impairment, aged ≥65 years, who were interviewed for the Health and Retirement Study in 2016 and asked about their perceived dementia risk (n = 711). Perceived dementia risk was ascertained with this question: "on a scale of 0 to 100, what is the percent chance that you will develop dementia sometime in the future?" We used multivariable-adjusted logistic regression to evaluate the association between perceived risk (0% versus >0%) and completion of a living will, appointment of a durable power of attorney for healthcare decisions, and discussion of treatment preferences.

resultsAmong respondents, 10.5% reported a perceived dementia risk of 0%. Perceived risk of 0% was associated with lower odds of completing a living will (OR 0.53; 95% CI, 0.30-0.93) and discussing treatment preferences (OR 0.51; 95% CI, 0.28-0.93) but not appointment of a durable power of attorney (OR 0.77; 95% CI, 0.42-1.39). Many respondents with perceived dementia risk >0% had not completed ACP activities, including a substantial minority of those with perceived risk >50%.

conclusionsOlder adults with no perceived dementia risk are less likely to participate in several forms of ACP, but the fact that many older adults with high levels of perceived risk had not completed ACP activities suggests that efforts beyond raising risk awareness are needed to increase engagement.

Indexed as

Advance Care PlanningDementiaAgedCross-Sectional StudiesHumansIndependent LivingLiving Willsadvance care planningdementiahealth literacyrisk perception

Identifiers

PMID35274737
PMCPMC9106856
OpenAlexW4220913606

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.