ArticleSocial psychiatry and psychiatric epidemiology2022
What has changed in the experiences of people with mental health problems during the COVID-19 pandemic: a coproduced, qualitative interview study.
Article in Social psychiatry and psychiatric epidemiology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Understanding the roles and experiences of mental health peer support workers in England: a qualitative interview study.BMC psychiatry · 2026Article
- Article
- Understanding the barriers and facilitators to delivering peer support effectively in England: a qualitative interview study.BMC psychiatry · 2025Article
- "I am not a priority": ethnic minority experiences of navigating mental health support and the need for culturally sensitive services during and beyond the pandemic.BMJ mental health · 2025Article
- Living during COVID-19: qualitative analysis of Experts by Experience UK University Associates' socioeconomic inequalities, including readiness recommendations.Frontiers in public health · 2025Article
- Left Behind: Experiences of Community Mental Health Center Clients with Serious Mental Illness During the COVID-19 Pandemic.Community mental health journal · 2024Article
- COVID-19 experience of people with severe mental health conditions and families in South Africa.The South African journal of psychiatry : SAJP : the journal of the Society of Psychiatrists of South Africa · 2024Article
- The Responsiveness of Mental Health Service Professionals to Two Years of Pandemic Emergency in Italy.Administration and policy in mental health · 2023Article
- Service use preceding and following first referral for psychiatric emergency care at a short-stay crisis unit: A cohort study across three cities and one rural area in England.The International journal of social psychiatry · 2023Article
- Co-producing rapid research: Strengths and challenges from a lived experience perspective.Frontiers in sociology · 2023Article
- Exploring the experiences of loneliness in adults with mental health problems: A participatory qualitative interview study.PloS one · 2023Article
- How has the Olympic legacy transformed the heart of East London? Understanding socio-economic exclusions and disproportionate COVID-19 impact on minoritised communities through a rights-based perspective.Frontiers in sports and active living · 2023Article
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Authors and funding
22 authors.
Funding
Abstract
purposeWe sought to understand how the experiences of people in the UK with pre-existing mental health conditions had developed during the course of the COVID-19 pandemic.
methodsIn September-October 2020, we interviewed adults with mental health conditions pre-dating the pandemic, whom we had previously interviewed 3 months earlier. Participants had been recruited through online advertising and voluntary sector community organisations. Semi-structured qualitative interviews were conducted by telephone or video-conference by researchers with lived experience of mental health difficulties, and, following principles of thematic analysis, were analysed to explore changes over time in people's experience of the pandemic.
resultsWe interviewed 44 people, achieving diversity of demographic characteristics (73% female, 54% White British, aged 18-75) and a range of mental health conditions and service use among our sample. Three overarching themes were derived from interviews. The first theme "spectrum of adaptation" describes how participants reacted to reduced access to formal and informal support through personal coping responses or seeking new sources of help, with varying degrees of success. The second theme describes "accumulating pressures" from pandemic-related anxieties and sustained disruption to social contact and support, and to mental health treatment. The third theme "feeling overlooked" reflects participants' feeling of people with mental health conditions being ignored during the pandemic by policy-makers at all levels, which was compounded for people from ethnic minority communities or with physical health problems.
conclusionIn line with previous research, our study highlights the need to support marginalised groups who are at risk of increased inequalities, and to maintain crucial mental and physical healthcare and social care for people with existing mental health conditions, notwithstanding challenges of the pandemic.
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