Evidence map›Paper›PMID 35266007›Full record

ArticleJournal of rehabilitation medicine2022

Caregiving, Participation, and Quality of Life of Closest Next of Kin of Persons Living with Spinal Cord Injury in Norway.

Annette Halvorsen, Kristine Pape, Marcel Post, Fin Biering-Sørensen, Monica Engelsjord, Aslak Steinsbekk

Abstract read
In one paragraph

Article in Journal of rehabilitation medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Annette HalvorsenClinic of Physical Medicine and Rehabilitation, Department of Spinal Cord Injuries; Department of Medical Quality Registries, St Olavs Hospital, Trondheim University Hospital; Department of Public Health and Nursing, Norwegian University of Science and Technology, Trondheim, Norway. Annette.Halvorsen@stolav.no.
Kristine Pape
Marcel Post
Fin Biering-Sørensen
Monica Engelsjord
Aslak Steinsbekk

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo investigate how next of kin of persons with spinal cord injury (SCI) experience various life areas in terms of caregiving, participation, and quality of life, and the impact of personal characteristics of next of kin and SCI characteristics.

designSurvey of next of kin linked to data on persons with SCI in the Norwegian SCI Registry.

participantsA total of 73 next of kin identified by persons with SCI.

methodsOutcome measures were caregiving (4 measures), participation (1 measure), and quality of life (2 measures).

resultsParticipants (73% partners, 73% female, mean age 56.4 years) gave various support to the person with SCI and considered it important to care and were happy to do so. Three-quarters of participants reported good mental health and life satisfaction, while one-quarter reported high levels of caregiver strain, especially related to emotional adjustments. Higher levels of caregiver strain were reported by participants of working age (< 67 years), and by those with middle level education.

conclusionThe majority of next of kin of persons living with SCI in Norway are doing well in most life areas. Caregiver strain may be reduced by strengthening the ability of next of kin to cope with emotional challenges.

Indexed as

Quality of LifeSpinal Cord InjuriesAdaptation, PsychologicalAgedCaregiversFemaleHumansMaleMental HealthMiddle Aged

Identifiers

PMID35266007
PMCPMC10348318

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.