ArticleJournal of autism and developmental disorders2023
Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study.
Article in Journal of autism and developmental disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- Care pathways, service access, and psychosociaasl support needs in children and adolescents with autism spectrum disorder: a narrative review.Frontiers in public health · 2026Review
- Family Experiences with Supplemental Social Security Income and Legal Guardianship for Autistic Adults: A Mixed-Methods Study.Research in autism spectrum disorders · 2025Article
- Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps.Frontiers in pediatrics · 2025Article
- Reproductive healthcare in adolescents with autism and other developmental disabilities.American journal of obstetrics and gynecology · 2024Article
- Increased rates of chronic physical health conditions across all organ systems in autistic adolescents and adults.Molecular autism · 2023Article
- Health conditions in autism: Defining the trajectory from adolescence to early adulthood.Autism research : official journal of the International Society for Autism Research · 2023Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Transitioning autistic youth from pediatric to adult healthcare requires coordination of multiple stakeholders, including youth, caregivers, and pediatric and adult care providers, whose interests at times overlap but often differ. To understand barriers and facilitators to inclusive transition experiences, we conducted thematic analysis of interviews with 39 stakeholders from the same large, integrated healthcare system. We identified three major themes: (1) Navigating the healthcare transition without guidance, (2) Health consequences of a passive healthcare transition, and (3) Strategies for inclusion and continuous engagement. Facilitators included gradual transition planning, a warm handoff between providers, and support of shared healthcare decision-making. Providers also sought clinical tools and logistical supports such as care coordinators and longer transition-specific visit types to enhance patient-centered care.
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Registered trials
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