Evidence map›Paper›PMID 35262495›Full record

ArticleJournal of medical Internet research2022

A National Network of Safe Havens: Scottish Perspective.

Chuang Gao, Mark McGilchrist, Shahzad Mumtaz, Christopher Hall, Lesley Ann Anderson, John Zurowski, Sharon Gordon, Joanne Lumsden, Vicky Munro, Artur Wozniak and 11 more

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Towards cross-application model-agnostic federated cohort discovery.Journal of the American Medical Informatics Association : JAMIA · 2024
    Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Review
  11. Data resource profile: the Scottish Combined Medicines Dataset (SCoMeD).International journal of population data science · 2023
    Article
  12. Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Chuang GaoHealth Informatics Centre, Ninewells Hospital & Medical School, University of Dundee, Dundee, United Kingdom.ORCID 0000-0002-6456-0301
Mark McGilchristHealth Informatics Centre, Ninewells Hospital & Medical School, University of Dundee, Dundee, United Kingdom.ORCID 0000-0003-4695-2261
Shahzad MumtazHealth Informatics Centre, Ninewells Hospital & Medical School, University of Dundee, Dundee, United Kingdom.ORCID 0000-0003-2606-2405
Christopher HallHealth Informatics Centre, Ninewells Hospital & Medical School, University of Dundee, Dundee, United Kingdom.ORCID 0000-0003-1368-4619
Lesley Ann AndersonCentre for Health Data Science, University of Aberdeen, Aberdeen, United Kingdom.ORCID 0000-0002-1000-3649
John ZurowskiImaging Centre of Excellence, Queen Elizabeth University Hospital, Glasgow, United Kingdom.ORCID 0000-0002-2263-6881
Sharon GordonGrampian Data Safe Haven, Aberdeen Centre for Health Data Science, University of Aberdeen, Aberdeen, United Kingdom.ORCID 0000-0002-7505-6979
Joanne LumsdenGrampian Data Safe Haven, Aberdeen Centre for Health Data Science, University of Aberdeen, Aberdeen, United Kingdom.ORCID 0000-0001-9842-700X
Vicky MunroGrampian Data Safe Haven, Aberdeen Centre for Health Data Science, University of Aberdeen, Aberdeen, United Kingdom.ORCID 0000-0002-2662-911X
Artur WozniakGrampian Data Safe Haven, Aberdeen Centre for Health Data Science, University of Aberdeen, Aberdeen, United Kingdom.ORCID 0000-0001-6887-4597
Michael SibleyElectronic Data Research and Innovation Service, Public Health Scotland, Edinburgh, United Kingdom.ORCID 0000-0002-2890-8868
Christopher BanksElectronic Data Research and Innovation Service, Public Health Scotland, Edinburgh, United Kingdom.ORCID 0000-0002-2220-2979
Chris DuncanLothian Research Safe Haven, Department of Public Health and Health Policy National Health Service Lothian, Edinburgh, United Kingdom.ORCID 0000-0001-8767-497X
Pamela LinkstedLothian Research Safe Haven, Department of Public Health and Health Policy National Health Service Lothian, Edinburgh, United Kingdom.ORCID 0000-0002-8880-2352
Alastair HumeEPCC, University of Edinburgh, Edinburgh, United Kingdom.ORCID 0000-0001-8322-9182
Catherine L StablesDataLoch, Usher Institute, University of Edinburgh, Edinburgh, United Kingdom.ORCID 0000-0002-5173-3090
Charlie MayorGlasgow Safe Haven, Research and Development division of National Health Service Greater Glasgow and Clyde, Glasgow, United Kingdom.ORCID 0000-0003-4729-3536
Jacqueline CaldwellElectronic Data Research and Innovation Service, Public Health Scotland, Edinburgh, United Kingdom.ORCID 0000-0002-3506-2936
Katie WildeGrampian Data Safe Haven, Aberdeen Centre for Health Data Science, University of Aberdeen, Aberdeen, United Kingdom.ORCID 0000-0001-5024-8846
Christian ColeHealth Informatics Centre, Ninewells Hospital & Medical School, University of Dundee, Dundee, United Kingdom.ORCID 0000-0002-2560-2484
Emily JeffersonHealth Informatics Centre, Ninewells Hospital & Medical School, University of Dundee, Dundee, United Kingdom.ORCID 0000-0003-2992-7582

Funding

British Heart FoundationChief Scientist OfficeDepartment of HealthMedical Research Council MC_PC_18029Medical Research Council MC_PC_21033Medical Research Council MR/S010351/1Wellcome Trust
6 · The paper itself

Abstract

For over a decade, Scotland has implemented and operationalized a system of Safe Havens, which provides secure analytics platforms for researchers to access linked, deidentified electronic health records (EHRs) while managing the risk of unauthorized reidentification. In this paper, a perspective is provided on the state-of-the-art Scottish Safe Haven network, including its evolution, to define the key activities required to scale the Scottish Safe Haven network's capability to facilitate research and health care improvement initiatives. A set of processes related to EHR data and their delivery in Scotland have been discussed. An interview with each Safe Haven was conducted to understand their services in detail, as well as their commonalities. The results show how Safe Havens in Scotland have protected privacy while facilitating the reuse of the EHR data. This study provides a common definition of a Safe Haven and promotes a consistent understanding among the Scottish Safe Haven network and the clinical and academic research community. We conclude by identifying areas where efficiencies across the network can be made to meet the needs of population-level studies at scale.

Indexed as

Electronic Health RecordsPrivacyHumansScotlanddata governanceelectronic health recordsSafe Haven

Identifiers

PMID35262495
PMCPMC8943560

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.