ArticleJournal of research in nursing : JRN2021
A comparison of caregiver burden between long-term care and developmental disability family caregivers.
Article in Journal of research in nursing : JRN, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
4 citing papers in PubMed, 6 citations in OpenAlex.
- Building rehabilitation care capacity for older adults living in long-term care through family/care partner and physical therapist engagement: a scoping review.BMC geriatrics · 2026Article
- Mental Ill-Health in Mothers Caring for Offspring With Intellectual Disabilities at Different Stages of Caregiving: Secondary Data Analysis and Data Linkage of Administrative and Health Records.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Patient-centered burdens and economic outcomes among patients who are veterans, people with intellectual and developmental disabilities, and people living in rural areas and their caregivers: a scoping review.Frontiers in public health · 2026Article
- Motivation in caregiving among mothers of children with intellectual and developmental disabilities in Iran: A qualitative study.BMC pediatrics · 2024Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAs the United States' population ages and health concerns rise, the family caregiver occupation will continue to be an integral part of the health care system.
aimsIt is important to examine the burden that family caregivers experience so they can seek out additional training and services to maintain their own well-being. The researchers examined caregiver burden from a perspective of developmentally disabled and long-term care.
methodsThe researchers examined difference in Zarit scores, guilt, burden and personal strain for 72 caregivers of people with developmental disability (DD) or people with long-term care (LTC) needs. The researchers also examined differences in these based on whether the individual was caregiving for family or "others".
resultsFor DD, there were significant differences in Zarit, role strain and personal strain; caring for others has significantly lower scores on these. Role strain was significantly higher than personal strain, which was significantly higher than guilt for both LTC and DD groups.
conclusionsGiven these findings, it is important to support family caregivers first and foremost with role strain, especially for those caring for family members with DD. This support could be given through personal counselling, caregiver training, non-profit social service resources, and support groups for family caregivers.
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Registered trials
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