ArticleBMC medical ethics2022
Trust and digital privacy in healthcare: a cross-sectional descriptive study of trust and attitudes towards uses of electronic health data among the general public in Sweden.
Article in BMC medical ethics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
41 citing papers in PubMed, 4 syntheses or guidelines pooled it, 62 citations in OpenAlex.
- Monitoring and evaluation instruments of individual health in community settings: a scoping review.Archives of public health = Archives belges de sante publique · 2026Pooled it
- Pseudonymization tools for medical research: a systematic review.BMC medical informatics and decision making · 2025Pooled it
- Measuring the willingness to share personal health information: a systematic review.Frontiers in public health · 2023Pooled it
- Digital Health Care, Telemedicine, and Medicolegal Issues in Orthopedics: A Review.International journal of environmental research and public health · 2022Pooled it
- Direct letters to relatives at risk of hereditary cancer-a randomised trial on healthcare-assisted versus family-mediated risk disclosure.European journal of human genetics : EJHG · 2025Trial
- Your DNA, your concerns: public attitudes toward donation of genomic data for research in four Latin American countries.Journal of community genetics · 2026Article
- Exploring patient motivations and preferences for medical data sharing with researchers: a simulation study using the iAgree platform.Journal of the American Medical Informatics Association : JAMIA · 2026Article
- Older people's health literacy on COVID-related health behaviours during the pandemic - Results from the SWEOLD 2021 study in Sweden.Scandinavian journal of public health · 2026Article
- The politics of integrating health systems and public programs: a review of political headwinds, tailwinds, and policy maker recommendations.European journal of public health · 2026Review
- Recent Advances in AI and GenAI for Health Informatics.Healthcare (Basel, Switzerland) · 2026Review
- Self-care strategies and interventions to address antimicrobial resistance: evidence review and recommendations for national programs, service providers, caregivers, and self-carers.Frontiers in public health · 2026Review
- Decoding perceived risks in online healthcare services: a safety-trust model based on grounded theory.Frontiers in digital health · 2026Article
- OpenNotes in dentistry as a strategy for patient engagement: opportunities, barriers, and a framework for implementation.Frontiers in oral health · 2026Review
- Health management gaps and EHR willingness among ethnic minority residents with rural backgrounds in Yunnan, China: a mixed-methods study.Frontiers in public health · 2026Article
- Public Attitudes and Predictors of Public Awareness of Personal Digital Health Data Sharing for Research: Cross-Sectional Study in Japan.JMIR human factors · 2025Article
- Public perceptions of digitalisation and patient safety: a cross-sectional survey in Germany.BMJ open · 2025Article
- Worldwide willingness to share health data high but privacy, consent and transparency paramount, a meta-analysis.NPJ digital medicine · 2025Article
- Applying the principle of justice in digital health.NPJ digital medicine · 2025Review
- Public Opinions from Malawian and Malawi Refugee Camp Residents of Wastewater and Environmental Surveillance.The American journal of tropical medicine and hygiene · 2025Article
- Heterogeneity in willingness to share personal health information: a nationwide cluster analysis of 20,000 adults in Japan.Archives of public health = Archives belges de sante publique · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe ability of healthcare to protect sensitive personal data in medical records and registers might influence public trust, which in turn might influence willingness to allow healthcare to use such data. The aim of this study was to examine how the general public's trust relates to their attitudes towards uses of health data.
methodsA stratified sample from the general Swedish population received a questionnaire about their willingness to share health data. Respondents were also asked about their trust in the management and protection of electronic health data.
resultsA large majority (81.9%) of respondents revealed high levels of trust in the ability of healthcare to protect electronic patient data. Good health was associated with significantly higher levels of trust compared to bad health. Respondents with low levels of trust were significantly less willing to allow personal data to be used for different purposes and were more inclined to insist on being asked for permission beforehand. Those with low levels of trust also perceived risks of unauthorized access to personal data to be higher and the likely damage of such unauthorized access worse, compared to those with high levels of trust.
conclusionsTrust in the ability of healthcare to protect electronic health is generally high in Sweden. Those with higher levels of trust are more willing to let their data be used, including without informed consent. It thus seems crucial to promote trust in order to be able to reap the benefits that digitalization makes possible through increased access and use of data in healthcare.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.