Evidence map›Paper›PMID 35244227›Full record

Trial reportChild: care, health and development2022

Parents' priorities and preferences for treatment of children with ADHD: Qualitative inquiry in the MADDY study.

Stacy V Lu, Brenda M Y Leung, Alisha M Bruton, Elizabeth Millington, E Alexander, Kelsey Camden, Irene Hatsu, Jeanette M Johnstone, L Eugene Arnold

Open access · greenAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Child: care, health and development, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
1.6field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 13 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 2 countries.

Stacy V LuDepartment of Population, Family, and Reproductive Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.ORCID 0000-0001-5941-533X
Brenda M Y LeungFaculty of Health Sciences, University of Lethbridge, Lethbridge, Alberta, Canada.ORCID 0000-0002-4699-8086
Alisha M BrutonDepartment of Psychiatry, Oregon Health & Science University, Portland, Oregon, USA.ORCID 0000-0002-5929-3149
Elizabeth MillingtonFaculty of Health Sciences, University of Lethbridge, Lethbridge, Alberta, Canada.
E AlexanderDepartment of Human Sciences, College of Education and Human Ecology, The Ohio State University, Columbus, Ohio, USA.ORCID 0000-0001-5528-7983
Kelsey CamdenDepartment of Psychiatry, Oregon Health & Science University, Portland, Oregon, USA.
Irene HatsuDepartment of Human Sciences, College of Education and Human Ecology, The Ohio State University, Columbus, Ohio, USA.ORCID 0000-0003-0501-9088
Jeanette M JohnstoneDepartment of Psychiatry, Oregon Health & Science University, Portland, Oregon, USA.ORCID 0000-0003-3947-5540
L Eugene ArnoldDepartment of Psychiatry and Behavioral Health, The Ohio State University, Columbus, Ohio, USA.ORCID 0000-0002-0886-0692
Oregon Health & Science University · USNew York State University College of Human Ecology · USUniversity of Lethbridge · CAJohns Hopkins University · USThe Ohio State University · US

Funding

Oregon Clinical and Translational Research InstituteUL1TR000128 · NCATS · OREGON HEALTH & SCIENCE UNIVERSITY · PI ELLISON, DAVID H · 2012 to 2015
$28.7M
The Ohio State University Center for Clinical and Translational Science (UL1)UL1TR000090 · NCATS · OHIO STATE UNIVERSITY · PI JACKSON, REBECCA D · 2012 to 2013
$7.9M
CAM Research Training in Neuroscience &StressT32AT002688 · NCCIH · OREGON HEALTH & SCIENCE UNIVERSITY · PI OKEN, BARRY S, SOUMYANATH, AMALA · 2005 to 2025
$7.2M
Double-Blind Randomized Clinical Trial of EEG Neurofeedback for ADHDR01MH100144 · NIMH · OHIO STATE UNIVERSITY · PI ARNOLD, L EUGENE · 2014 to 2018
$3.5M
NCATS NIH HHS UL1 TR000090NCATS NIH HHS UL1 TR000128NCCIH NIH HHS T32 AT002688NIMH NIH HHS R01 MH100144
6 · The paper itself

Abstract

backgroundParents' lived experiences of having a child with ADHD may shape their decision making regarding ADHD treatment options for their child. The aim of this study was to explore parents' experiences of living with a child with ADHD in the family and how their experiences influence their perspectives on treatment preferences and priorities.

methodsA phenomenological qualitative design was used. Semistructured interviews were conducted with parents of children with ADHD who were enrolled in a multisite randomized controlled trial. Interviews were transcribed verbatim, and transcripts at each site were double coded. Initial codes were derived directly from the text. Qualitative data were analysed with an inductive approach.

resultsTwenty-three parents were interviewed: eight from Alberta, Canada; eight from Portland, Oregon, USA; and seven from Columbus, Ohio, USA. Among the parents, 69% were married, 86% completed college education and 52% reported household income over $80,000. Among the children, the mean age was 9.6 years (SD = 1.8 years), 78% were boys and 48% were never medicated for their ADHD. Two major themes emerged from the analysis. Theme 1 was 'impact of ADHD on families within and outside the home' with the following subthemes: 'reconfiguring the home life', 'trial-and-error of accommodations at school' and 'responding to social pressures to fit in'. Theme 2 was 'enabling appropriate and accessible treatments for families' with the following subthemes: 'finding the "right fit" with professionals and treatments' and 'factors influencing inequitable access to treatments'.

conclusionsParents described shared experiences and identified similar barriers, preferences and priorities for ADHD treatments regardless of demographic differences by site. Families desired access to family-centred, multimodal approaches to ADHD treatment. Further research is needed to identify the specific structural changes to healthcare, services and policies that will better support this approach.

Indexed as

Attention Deficit Disorder with HyperactivityAlbertaChildFamilyFemaleHumansMaleParentsQualitative ResearchADHDADHD treatmentlived experienceparentsphenomenologicalqualitativetreatment decision making

Identifiers

PMID35244227
PMCPMC10215012
OpenAlexW4214895013

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.