Evidence map›Paper›PMID 35231592›Full record

ArticleJournal of pain and symptom management2022

COVID-19: Impact on Pediatric Palliative Care.

Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Irene Higginson, Wei Gao, Myra Bluebond-Langner and 4 more

Abstract read

PubMed Full text at PMC Publisher

In one paragraph

Article in Journal of pain and symptom management, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it

0cells of the map it votes in

7citing papers in PubMed, 1 pooled it

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

Barriers and facilitators of childhood COVID-19 vaccination among parents: A systematic review.Frontiers in pediatrics · 2022
Pooled it
What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents.The patient · 2025
Article
Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care.Palliative medicine · 2025
Article
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders.Palliative medicine · 2024
Article
Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children's Palliative Care Outcome Scale (C-POS:UK).Palliative care and social practice · 2024
Article
Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation.Palliative medicine · 2023
Article
Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study.European journal of pediatrics · 2022
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Hannah May ScottFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK. Electronic address: hannah.m.scott@kcl.ac.uk.

Lucy CoombesFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care (L.C.), Cicely Saunders Institute, King's College London, London, UK; Royal Marsden NHS Foundation Trust, London, UK.

Debbie BraybrookFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK.

Anna RoachFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care (A.R.), Cicely Saunders Institute, King's College London, London, UK; University College London, London, UK.

Daney HarðardóttirFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK.

Katherine BristoweFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK.

Clare Ellis-SmithFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK.

Irene HigginsonFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK.

Wei GaoFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK.

Myra Bluebond-LangnerUniversity College London (M.B.L.), Louis Dundas Centre for Children's Palliative Care, London, UK; Rutgers University, New Jersey, USA.

Bobbie FarsidesBrighton and Sussex Medical School (B.F.), University of Sussex, Brighton, UK.

Fliss Em MurtaghWolfson Palliative Care Research Centre (F.EM.M.), Hull York Medical School, University of Hull, Hull, UK.

Lorna K FraserMartin House Research Centre (L.K.F.), Department of Health Sciences, University of York, York, UK.

Richard HardingFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

contextChildren and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations.

objectivesTo explore the impact of the COVID-19 pandemic and lockdowns on this population.

methodsSub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners.

resultsCOVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom's first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress.

conclusionContinued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.

Indexed as

COVID-19Palliative CareAdolescentChildCommunicable Disease ControlFamilyHumansPandemicsCOVID-19palliative carePediatrics

Identifiers

PMID35231592

DOI10.1016/j.jpainsymman.2022.02.330

PMCPMC8881421

What OpenQuestion holds

Textmetadata

Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.