Evidence map›Paper›PMID 35226076›Full record

ArticleJAMA network open2022

Reporting of Discrimination by Health Care Consumers Through Online Consumer Reviews.

Jason K C Tong, Eda Akpek, Anusha Naik, Medha Sharma, Danielle Boateng, Anietie Andy, Raina M Merchant, Rachel R Kelz

Abstract read
In one paragraph

Article in JAMA network open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Racism against healthcare users in inpatient care: a scoping review.International journal for equity in health · 2024
    Article
  7. Article
  8. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jason K C TongNational Clinician Scholars Program, Michael J. Crescenz Veterans Affairs Medical Center, Philadelphia, Pennsylvania.
Eda AkpekPenn Mixed Methods Research Laboratory, Perelman School of Medicine, University of Pennsylvania, Philadelphia.
Anusha NaikCenter for Surgery and Health Economics, Hospital of the University of Pennsylvania, Philadelphia.
Medha SharmaCenter for Surgery and Health Economics, Hospital of the University of Pennsylvania, Philadelphia.
Danielle BoatengCenter for Surgery and Health Economics, Hospital of the University of Pennsylvania, Philadelphia.
Anietie AndyCenter for Digital Health, Perelman School of Medicine, University of Pennsylvania, Philadelphia.
Raina M MerchantLeonard Davis Institute of Health Economics, Philadelphia, Pennsylvania.
Rachel R KelzCenter for Surgery and Health Economics, Hospital of the University of Pennsylvania, Philadelphia.

Funding

Mentoring and Patient Oriented Research in Cardiovascular Health and Digital Data ScienceK24HL157621 · NHLBI · UNIVERSITY OF PENNSYLVANIA · PI MERCHANT, RAINA · 2021 to 2025
$615k
Analyzing Online Reviews to Evaluate Quality of Care at Substance Use Disorder Treatment FacilitiesR21DA050761 · NIDA · UNIVERSITY OF PENNSYLVANIA · PI MERCHANT, RAINA · 2020 to 2021
$446k
NHLBI NIH HHS K24 HL157621NIDA NIH HHS R21 DA050761
6 · The paper itself

Abstract

importanceLittle is known about how discrimination in health care relates to inequities in hospital-based care because of limitations in the ability to measure discrimination. Consumer reviews offer a novel source of data to capture experiences of discrimination in health care settings.

objectiveTo examine how health care consumers perceive and report discrimination through public consumer reviews. DESIGN, SETTING, AND

participantsThis qualitative study assessed Yelp online reviews from January 1, 2011, to December 31, 2020, of 100 randomly selected acute care hospitals in the US. Word filtering was used to identify reviews potentially related to discrimination by using keywords abstracted from the Everyday Discrimination Scale, a commonly used questionnaire to measure discrimination. A codebook was developed through a modified grounded theory and qualitative content analysis approach to categorize recurrent themes of discrimination, which was then applied to the hospital reviews. EXPOSURES: Reported experiences of discrimination within a health care setting. MAIN OUTCOMES AND MEASURES: Perceptions of how discrimination in health care is experienced and reported by consumers.

resultsA total of 10 535 reviews were collected. Reviews were filtered by words commonly associated with discriminatory experiences, which identified 2986 reviews potentially related to discrimination. Using the codebook, the team manually identified 182 reviews that described at least 1 instance of discrimination. Acts of discrimination were categorized by actors of discrimination (individual vs institution), setting (clinical vs nonclinical), and directionality (whether consumers expressed discriminatory beliefs toward health care staff). A total of 53 reviews (29.1%) were coded as examples of institutional racism; 89 reviews (48.9%) mentioned acts of discrimination that occurred in clinical spaces as consumers were waiting for or actively receiving care; 25 reviews (13.7%) mentioned acts of discrimination that occurred in nonclinical spaces, such as lobbies; and 66 reviews (36.3%) documented discrimination by the consumer directed at the health care workforce. Acts of discrimination are described through 6 recurrent themes, including acts of commission, omission, unprofessionalism, disrespect, stereotyping, and dehumanizing. CONCLUSIONS AND RELEVANCE: In this qualitative study, consumer reviews were found to highlight recurrent patterns of discrimination within health care settings. Applying quality improvement tools, such as the Plan-Do-Study-Act cycle, to this source of data and this study's findings may help inform assessments and initiatives directed at reducing discrimination within the health care setting.

Indexed as

Delivery of Health CareHealth FacilitiesHumansQualitative Research

Identifiers

PMID35226076
PMCPMC8886543

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.