Evidence map›Paper›PMID 35217944›Full record

ArticleJournal of autism and developmental disorders2023

Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy.

Tierney Kim, Kassandra Martinez, Breanna Lopez Cruz, Jeannie S Huang, Nicole A Stadnick

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.2field-weighted citation impact, top 51% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Tierney KimPoint Loma Nazarene University, San Diego, CA, USA.
Kassandra MartinezSan Diego State University/UC San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, USA. kamartin@health.ucsd.ed.ORCID http://orcid.org/0000-0002-0230-0088
Breanna Lopez CruzDepartment of Pediatrics, University of California San Diego, San Diego, CA, USA.
Jeannie S HuangDissemination and Implementation Science Center, University of California San Diego, La Jolla, CA, USA.
Nicole A StadnickChild & Adolescent Services Research Center, San Diego, CA, USA.
University of California San Diego · USPoint Loma Nazarene University · USSan Diego State University · US

Funding

1/2 Effectiveness of a Multi-Level Implementation Strategy for ASD Interventions - SupplementR01MH111950 · NIMH · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI BROOKMAN-FRAZEE, LAUREN · 2017 to 2020
$3.3M
Adapting and Implementing an Integrated Care Model for Youth with Autism Spectrum Disorder and Psychiatric ComorbidityK23MH110602 · NIMH · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI STADNICK, NICOLE A · 2017 to 2020
$813k
Refining and Implementing Technology-Enhanced Family Navigation to Promote Early Access and Engagement with Mental Health Services for Youth with AutismR34MH120190 · NIMH · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI STADNICK, NICOLE A · 2020 to 2022
$710k
NIMH NIH HHS 3R01MH111950-03S1NIMH NIH HHS K23 MH110602NIMH NIH HHS K23MH110602NIMH NIH HHS R01 MH111950NIMH NIH HHS R34 MH120190
6 · The paper itself

Abstract

Limited guidance is available for families of youth with ASD (YASD) to prepare for invasive medical procedures. This study examined caregiver perspectives regarding YASD's gastrointestinal endoscopy (GE) experience to improve the endoscopy experience for YASD. Thirty-four caregivers of YASD, (M = 9.85 years, SD = 4.6) who underwent GE at Rady Children's Hospital, San Diego between May 2018 and July 2019 (identified via electronic health record) participated in a structured phone interview. Caregivers reported a positive experience due to the procedural team's responsiveness to the needs of YASD and appropriately answering/addressing questions/concerns. Caregivers reported a need for ASD-specific information on how to prepare for GE. Specific recommendations are discussed. Study findings offer strategies to improve the care experience of YASD undergoing GE.

Indexed as

Autism Spectrum DisorderAutistic DisorderAdolescentCaregiversChildEndoscopy, GastrointestinalHumansAutism spectrum disorderHealthcare servicePatient experienceProcedural careQualitative research

Identifiers

PMID35217944
PMCPMC9402801
OpenAlexW4214588440

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.