Evidence map›Paper›PMID 35212562›Full record

ArticleNursing ethics2022

Children's informed signified and voluntary consent to heart surgery: Professionals' practical perspectives.

Priscilla Alderson, Hannah Bellsham-Revell, Joe Brierley, Nathalie Dedieu, Joanna Heath, Mae Johnson, Samantha Johnson, Alexia Katsatis, Romana Kazmi, Liz King and 6 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Nursing ethics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Children's understanding and consent to heart surgery: Multidisciplinary teamwork and moral experiences.Journal of child health care : for professionals working with children in the hospital and community · 2023
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Priscilla AldersonSocial Research Institute, 4919University College, London, UK.ORCID https://orcid.org/0000-0003-4002-4501
Hannah Bellsham-RevellEvelina Children's Hospital, Guy's and St Thomas' NHS Trust, London, UK.
Joe BrierleyGreat Ormond Street Hospital NHS Trust, London, UK.
Nathalie DedieuGreat Ormond Street Hospital NHS Trust, London, UK.
Joanna Heath4956Children's Heart Federation, London, UK.
Mae JohnsonGreat Ormond Street Hospital NHS Trust, London, UK.
Samantha JohnsonEvelina Children's Heart Organisation ECHO, London, UK.
Alexia KatsatisLittle Hearts Matter, Birmingham, UK.
Romana KazmiGreat Ormond Street Hospital NHS Trust, London, UK.
Liz KingChildren's Nursing, 4914London South Bank University, London, UK.
Rosa MendizabalSocial Research Institute, 4919University College, London, UK.
Katy SutcliffeSocial Research Institute, 4919University College, London, UK.
Judith TrowellTavistock Clinic London and University of Worcester, UK.
Trisha VigneswarenEvelina Children's Hospital, Guy's and St Thomas' NHS Trust, London, UK.
Hugo WellesleyGreat Ormond Street Hospital NHS Trust, London, UK.
Jo WrayGreat Ormond Street Hospital NHS Trust, London, UK.

Funding

British Heart Foundation PG/18/22/33604
6 · The paper itself

Abstract

backgroundThe law and literature about children's consent generally assume that patients aged under-18 cannot consent until around 12 years, and cannot refuse recommended surgery. Children deemed pre-competent do not have automatic rights to information or to protection from unwanted interventions. However, the observed practitioners tend to inform young children s, respect their consent or refusal, and help them to "want" to have the surgery. Refusal of heart transplantation by 6-year-olds is accepted. RESEARCH QUESTION: What are possible reasons to explain the differences between theories and practices about the ages when children begin to be informed about elective heart surgery, and when their consent or refusal begins to be respected? RESEARCH DESIGN, PARTICIPANTS AND CONTEXT: Research methods included reviews of related healthcare, law and ethics literature; observations and conversations with staff and families in two London hospitals; audio-recorded semi-structured interviews with a purposive sample of 45 healthcare professionals and related experts; interviews and a survey with parents and children aged 6- to 15-years having elective surgery (not reported in this paper); meetings with an interdisciplinary advisory group; thematic analysis of qualitative data and co-authorship of papers with participants. ETHICAL CONSIDERATIONS: Approval was granted by four research ethics committees/authorities. All interviewees gave their informed written consent.

findingsInterviewees explained their views and experiences about children's ages of competence to understand and consent or refuse, analysed by their differing emphases on informed, signified or voluntary consent. DISCUSSION: Differing views about children's competence to understand and consent are associated with emphases on consent as an intellectual, practical and/or emotional process.

Indexed as

Cardiac Surgical ProceduresInformed ConsentAdolescentChildCommunicationHumansParentsSurveys and Questionnairesclinical ethicsinformed consentmoral sensitivitypaediatric practicetruth-telling

Identifiers

PMID35212562
PMCPMC9289987

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.