Evidence map›Paper›PMID 35212102›Full record

ArticleNursing & health sciences2022

Patients' experiences of the decision-making process for clinical trial participation.

Trine A Gregersen, Regner Birkelund, Maiken Wolderslund, Karina Dahl Steffensen, Jette Ammentorp

Abstract read
In one paragraph

Article in Nursing & health sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  7. Scoping review of oncology clinical trials nursing: Roles, competencies, and evolving practice in cancer research.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2026
    Article
  8. Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Trine A GregersenCentre for Research in Patient Communication, Odense University Hospital, Odense, Denmark.ORCID https://orcid.org/0000-0002-6947-6926
Regner BirkelundDepartment of Regional Health Research, Faculty of Health Sciences University of Southern Denmark, Odense, Denmark.ORCID https://orcid.org/0000-0002-5374-0630
Maiken WolderslundCentre for Research in Patient Communication, Odense University Hospital, Odense, Denmark.ORCID https://orcid.org/0000-0002-3729-3914
Karina Dahl SteffensenDepartment of Regional Health Research, Faculty of Health Sciences University of Southern Denmark, Odense, Denmark.ORCID https://orcid.org/0000-0002-9217-3907
Jette AmmentorpCentre for Research in Patient Communication, Odense University Hospital, Odense, Denmark.ORCID https://orcid.org/0000-0001-6249-9431

Funding

Lillebaelt Hospital - University Hospital of Southern DenmarkRegion of Southern Denmark
6 · The paper itself

Abstract

Clinical decision-making about participating in a clinical trial is a complex process influenced by overwhelming information about prognosis, disease, and treatment options. The study aimed to explore patients' experiences of the decision-making process when patients are presented with the opportunity to participate in a cancer clinical trial and to shed light on how patients experience the health communication, the nurse's role, and the physician's role. A qualitative study design was applied. Nine patients with advanced cancer were interviewed after being informed about their treatment options. Data were analyzed using thematic analysis. The results showed that patients made treatment decisions mainly guided by their emotions and trust in the physician. Furthermore, the physicians had a great impact on the decisions, and the nurse's role was associated with conversations about how to manage life. The study highlights the importance of talking about prognosis and addressing the patient's existential issues, particularly in this context of advanced cancer. The study elucidates a need for healthcare professionals to engage in health communication about life when it is coming to an end.

Indexed as

Decision MakingPatient ParticipationCommunicationHumansQualitative ResearchTrustclinical decision-makingclinical trialshealth communicationnurse's roleperson-centered carephysician's roletherapies

Identifiers

PMID35212102
PMCPMC9314595

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.