ArticleChildren (Basel, Switzerland)2022
Parents' Challenges beyond the Pediatric Intensive Care Unit: Fraying at the Seams while Balancing between Two Worlds, Home and Hospital.
Article in Children (Basel, Switzerland), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Discharge Screening Predicts Persistent Parental Psychological Distress After Pediatric Critical Illness.Children (Basel, Switzerland) · 2025Article
- The Hospitalisation Experience and Distress Among Jewish and Bedouin Parents of Hospitalised Children in Israel.Acta paediatrica (Oslo, Norway : 1992) · 2025Article
- Challenges and coping between parents in shared decision-making for children with complex, life-threatening conditions: A qualitative content analysis.Journal of pediatric nursingArticle
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3 authors.
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Abstract
backgroundThe dominant tradition in studying parents' responses to their child's hospitalization in the pediatric intensive care unit (PICU) is to focus on their immediate environment and their children's well-being. This view of the parents' experiences fails to describe the broader set of concurrent challenges beyond the PICU that parents carry with them into the PICU.
objectivesThis study describes (a) parents' reactions to juggling their two worlds, home and hospital, when their child is hospitalized in the PICU, and (b) the impact of this juggling on their lives.
methodsFifteen parents whose child was admitted into a PICU at a tertiary medical center for children in the Pacific Northwest participated in semi-structured interviews. Data analysis and interpretation were guided by grounded theory.
resultsThe theory grounded in the data and integrated with the core category was Fraying at the Seams while Balancing between Two Worlds, Home and Hospital. Analyses revealed two categories: Bringing My Life to a Halt and Throwing Our Whole Life Off.
conclusionEven though parents were physically and emotionally present with their child in the PICU, they felt frayed as they concurrently struggled with their physical distance from other children at home. This strain of living in two worlds caused feelings of inadequacy to fulfill their parental role.
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