Evidence map›Paper›PMID 35204906›Full record

ArticleChildren (Basel, Switzerland)2022

Barriers and Opportunities for Patient-Reported Outcome Implementation: A National Pediatrician Survey in the United States.

Ming Chen, Conor M Jones, Hailey E Bauer, Onyekachukwu Osakwe, Pavinarmatha Ketheeswaran, Justin N Baker, I-Chan Huang

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Ming ChenCollege of Medicine, University of Tennessee Health Science Center, Memphis, TN 38163, USA.ORCID 0000-0003-3215-8657
Conor M JonesWeill Medical College, Cornell University, New York, NY 10021, USA.
Hailey E BauerDepartment of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
Onyekachukwu OsakweSchool of Medicine, University of Mississippi, Jackson, MS 39216, USA.
Pavinarmatha KetheeswaranAlpert Brown Medical School, Brown University, Providence, RI 02903, USA.
Justin N BakerDepartment of Oncology, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
I-Chan HuangDepartment of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.ORCID 0000-0002-1194-3923

Funding

Patient-Reported Outcomes Version of CTCAE involving Childhood Cancer SurvivorsR01CA238368 · NCI · ST. JUDE CHILDREN'S RESEARCH HOSPITAL · PI BAKER, JUSTIN N, HUANG, I-CHAN · 2019 to 2023
$3.5M
Using Item Response Theory to Improve Children's Quality of Life AssessmentK23HD057146 · NICHD · UNIVERSITY OF FLORIDA · PI HUANG, I-CHAN · 2009 to 2011
$378k
NCI NIH HHS R01 CA238368NICHD NIH HHS K23 HD057146
6 · The paper itself

Abstract

purposeTo characterize pediatricians' perceived barriers and areas of confidence in assessing patient-reported outcomes (PROs) in the U.S., and to test associations of these factors with implementing PRO assessment.

methodsUsing a random sample from the members of American Medical Association, we recruited general pediatricians and pediatric subspecialists to complete a survey (July 2011 to December 2013). Perceived barriers and confidence in PRO assessment were compared by age, pediatric specialty (general pediatrics, seven subspecialties), practice settings (academic, private), and region of practice. Multivariable logistic regressions tested associations of demographic factors, barriers, and confidence factors with the implementation of PRO assessment.

findingsThe survey was completed by 458 participants (response rate 48.5%); of these, 40.4%, 15.9%, 15.5%, and 8.1% were general pediatricians, cardiology, hematology/oncology, and pulmonary specialists, respectively. PRO assessment was implemented by 29.0% of the pediatricians. The top five barriers for PRO assessment included limited time/manpower (79.0%), limited training (77.4%), lengthy PRO instruments (76%), lack of meaningful cut-offs on PRO scores (75.5%), and unavailable PRO instruments (75.0%). Limited knowledge of PROs (OR 4.10; 95% CI 2.21, 7.60) and unavailability of PRO instruments (OR 1.87; 95% CI 1.01, 3.49) increased the odds of not implementing the assessment, whereas confidence in PRO assessments compatible with norms (OR 0.41; 95% CI 0.23, 0.72) and perceived benefit over clinical judgment alone (OR 0.53; 95% CI 0.31, 0.93) decreased the odds of not implementing the assessment.

interpretationsignificant barriers to PRO assessment in pediatric settings suggest the need for providing training, resources, and practical guidance toward implementation. Patient or Public Contribution: healthcare service users contributed to this study by completing a survey and providing feedback about the barriers and areas of confidence in assessing PROs for pediatric populations.

Indexed as

barrierimplementationpatient-reported outcomespediatricsphysician survey

Identifiers

PMID35204906
PMCPMC8870373

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.