Evidence map›Paper›PMID 35204852›Full record

ArticleChildren (Basel, Switzerland)2022

Phenylketonuria Patients' and Their Caregivers' Perception of the Pandemic Lockdown: The Results of a National Online Survey.

Dariusz Walkowiak, Bożena Mikołuć, Renata Mozrzymas, Łukasz Kałużny, Bożena Didycz, Dorota Korycińska-Chaaban, Michał Patalan, Joanna Jagłowska, Agnieszka Chrobot, Rafał Staszewski and 1 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Children (Basel, Switzerland), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Dariusz WalkowiakDepartment of Organization and Management in Health Care, Poznan University of Medical Sciences, 60-356 Poznan, Poland.ORCID 0000-0001-8874-2401
Bożena MikołućDepartment of Pediatrics, Rheumatology, Immunology and Metabolic Bone Diseases, Medical University of Bialystok, Waszyngtona Str. 17, 15-274 Bialystok, Poland.ORCID 0000-0002-8284-6426
Renata MozrzymasResearch and Development Center, Regional Specialist Hospital, Kamieńskiego Str. 73a, 51-124 Wroclaw, Poland.
Łukasz KałużnyDepartment of Pediatric Gastroenterology and Metabolic Diseases, Poznan University of Medical Sciences, Szpitalna 27/33, 60-572 Poznan, Poland.
Bożena DidyczOutpatient Metabolic Clinic, University Children's Hospital, 30-663 Cracow, Poland.
Dorota Korycińska-ChaabanPKU Polyclinic, Institute of Mother and Child, Kasprzaka 17A, 01-211 Warsaw, Poland.
Michał PatalanDepartment of Pediatrics, Endocrinology, Diabetology, Metabolic Diseases and Cardiology, Pomeranian Medical University, Unii Lubelskiej 1, 71-252 Szczecin, Poland.ORCID 0000-0002-5981-6456
Joanna JagłowskaDepartment of Pediatrics, Hematology and Oncology, Medical University of Gdansk, Dębinki Str. 7, 80-211 Gdansk, Poland.
Agnieszka ChrobotVoivodship Children Hospital, Chodkiewicza Str. 44, 85-667 Bydgoszcz, Poland.
Rafał StaszewskiDepartment of Hypertension, Angiology and Internal Medicine, Poznan University of Medical Sciences, Długa Str. 1/2, 60-356 Poznan, Poland.
Jarosław WalkowiakDepartment of Pediatric Gastroenterology and Metabolic Diseases, Poznan University of Medical Sciences, Szpitalna 27/33, 60-572 Poznan, Poland.ORCID 0000-0001-5813-5707

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The first pandemic lockdown dramatically impacted many aspects of everyday life, including healthcare systems. The purpose of this study was to identify problems of patients with phenylketonuria (PKU) and their parents/caregivers during that time. We aimed to analyse potential differences in the self-reported compliance and characteristics of contacts with a doctor/dietitian before and during the pandemic lockdown and the perception of access to special food and opinions on remote contacts between a particular group of respondents. All participants (

Indexed as

COVID-19 pandemicphenylketonuriaPKUremote medicine

Identifiers

PMID35204852
PMCPMC8869859

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.