Evidence map›Paper›PMID 35193430›Full record

ArticleJournal of diabetes science and technology2023

A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study.

Kelly J McGorm, James D Brown, Rebecca L Thomson, Helena Oakey, Belinda Moore, Alexandra Hendry, Peter G Colman, Maria E Craig, Elizabeth A Davis, Mark Harris and 8 more

Open access · greenAbstract readEvaluation Study
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of diabetes science and technology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.6field-weighted citation impact, top 33% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 4 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 9 institutions in 1 country.

Kelly J McGormRobinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.
James D BrownRobinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.
Rebecca L ThomsonRobinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.
Helena OakeyRobinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.
Belinda MooreDepartment of Diabetes & Endocrinology, The Royal Melbourne Hospital, Melbourne, VIC, Australia.
Alexandra HendryRobinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.
Peter G ColmanDepartment of Diabetes & Endocrinology, The Royal Melbourne Hospital, Melbourne, VIC, Australia.
Maria E CraigSchool of Women's and Children's Health, Faculty of Medicine, UNSW Sydney, Sydney, NSW, Australia.
Elizabeth A DavisTelethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth, WA, Australia.
Mark HarrisQueensland Children's Hospital, South Brisbane, QLD, Australia.
Leonard C HarrisonWalter and Eliza Hall Institute of Medical Research, Melbourne, VIC, Australia.
Aveni HaynesTelethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth, WA, Australia.
Georgia SoldatosDiabetes and Vascular Medicine Unit, Monash Health, Melbourne, VIC, Australia.
Peter VuillerminChild Health Research Unit, Barwon Health, Geelong, VIC, Australia.
John M WentworthDepartment of Diabetes & Endocrinology, The Royal Melbourne Hospital, Melbourne, VIC, Australia.
Jennifer J CouperRobinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.
Megan A S PennoRobinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.ORCID 0000-0002-9617-0826
ENDIA Study Group
The University of Adelaide · AUThe Royal Melbourne Hospital · AUThe Kids Research Institute Australia · AUBarwon Health · AUChildren's Health Queensland Hospital and Health Service · AUChildren's Hospital at Westmead · AUMonash Health · AUWalter and Eliza Hall Institute of Medical Research · AUWomen's and Children's Hospital · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe Environmental Determinants of Islet Autoimmunity (ENDIA) study is an Australia-wide pregnancy-birth cohort study following children who have a first-degree relative with type 1 diabetes (ACTRN1261300794707). A dedicated ENDIA Facebook page was established in 2013 with the aim of enhancing recruitment and supporting participant retention through dissemination of study information. To measure the impact of Facebook, we evaluated the sources of referral to the study, cohort demographics, and withdrawal rates. We also investigated whether engagement with Facebook content was associated with specific post themes.

methodsCharacteristics of Facebook versus conventional recruits were compared using linear, logistic, and multinomial logistic regression models. Logistic regression was used to determine the risk of study withdrawal. Data pertaining to 794 Facebook posts over 7.5 years were included in the analysis.

resultsFacebook was the third largest source of referral (300/1511; 19.9%). Facebook recruits were more frequently Australian-born (

conclusionsFacebook was a valuable recruitment tool for ENDIA. Compared with conventional recruits, Facebook recruits were three times less likely to withdraw during long-term follow-up and had different sociodemographic characteristics. Facebook content featuring participants was the most engaging. These findings inform social media strategies for future cohort and type 1 diabetes studies.

trial registrationAustralia New Zealand Clinical Trials Registry: ACTRN1261300794707.

Indexed as

Diabetes Mellitus, Type 1Social MediaAustraliaAutoimmunityChildCohort StudiesFemaleHumansPregnancyclinical researchcohortFacebookpregnancyrecruitmentretentionsocial mediatype 1 diabetes

Identifiers

PMID35193430
PMCPMC10210110
OpenAlexW4213415398

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.