Evidence map›Paper›PMID 35188317›Full record

ArticleHealth & social care in the community2022

COVID-19 and community-based care services: Experiences of people living with dementia and their informal carers in Italy.

Ilaria Chirico, Giovanni Ottoboni, Clarissa Giebel, Alessandro Pappadà, Marco Valente, Valentina Degli Esposti, Mark Gabbay, Rabih Chattat

Open access · hybridAbstract read
In one paragraph

Article in Health & social care in the community, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
3.5field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it, 18 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Italian guidance on Dementia Day Care Centres: A position paper.Aging clinical and experimental research · 2023
    Review
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 2 countries.

Ilaria ChiricoDepartment of Psychology, University of Bologna, Bologna, Italy.ORCID 0000-0001-9799-0204
Giovanni OttoboniDepartment of Psychology, University of Bologna, Bologna, Italy.ORCID 0000-0002-7649-6642
Clarissa GiebelDepartment of Primary Care & Mental Health, University of Liverpool, Liverpool, UK.ORCID 0000-0002-0746-0566
Alessandro PappadàDepartment of Psychology, University of Bologna, Bologna, Italy.
Marco ValenteDepartment of Psychology, University of Bologna, Bologna, Italy.
Valentina Degli EspostiDepartment of Psychology, University of Bologna, Bologna, Italy.
Mark GabbayDepartment of Primary Care & Mental Health, University of Liverpool, Liverpool, UK.
Rabih ChattatDepartment of Psychology, University of Bologna, Bologna, Italy.ORCID 0000-0002-3889-2839
University of Bologna · ITUniversity of Liverpool · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The COVID-19 pandemic has significantly limited access to health and social care support systems for people with dementia and their carers, compounding the severe social restrictions. The aim of this study was to investigate the experiences of COVID-19 among community-dwelling people with dementia and their informal carers in Italy. Specifically, we focused on access to community-based services and adopted solutions to provide support and care during exceptional times. Informal carers, caring for someone with dementia and attending community-based services in Italy, participated in remote semi-structured interviews between October and November 2020. Participants were asked about the effects of social isolation and closure of in-person services on their daily lives as well as the challenges of dementia care. Transcripts were analysed using inductive thematic analysis. 22 informal carers were interviewed. Three themes emerged: (1) Disruptions to people with dementia's lives and health; (2) COVID-19 as an additional stressor for carers; and (3) New ways of caring for people with dementia during COVID-19. Face-to-face social care and social support services were suddenly interrupted and restrictions on social distancing were introduced, thus leading to people with dementia's impaired health and increased behavioural and psychological symptoms. Not only the amount but also the intensity of care increased, with no chance of respite for informal carers. Overall remote activities provided participants with emotional and social benefits, while allowing the continuity of relationships with services staff and users and of care. However, according to carers, a combination of virtual and face-to-face activities could better counterbalance the multiple adverse outcomes of COVID-19. Public health measures should be designed carefully to consider the safety needs and the physical, psychological and social needs of people with dementia. Within a holistic care approach, social care services need to be enabled better to guarantee high-quality care even during pandemic times.

Indexed as

COVID-19DementiaCaregiversCommunity Health ServicesHumansPandemicscaregiversCOVID-19dementiapublic healthsocial caresocial supporttechnology

Identifiers

PMID35188317
PMCPMC9111588
OpenAlexW4213197585

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.