ReviewTherapeutic innovation & regulatory science2022
Developing a More Tailored Approach to Patient and Public Involvement with Children and Families in Pediatric Clinical Research: Lessons Learned.
Review in Therapeutic innovation & regulatory science, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Involvement of children and young people in the conduct of health research: A rapid umbrella review.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- "What is data?" Learnings from paediatric patient and sibling involvement in co-producing a research communication tool for children and young people.Research involvement and engagement · 2026Article
- Reliability and readability of AI platforms for pediatric health advice: a comparative analysis.Scientific reports · 2026Article
- A framework to amplify the voices of underrepresented children and young people in rare disease research.Journal of patient-reported outcomes · 2026Article
- Reimagining paediatric care: technology, trust, and the global movement for child-centred innovation.Frontiers in medicine · 2026Review
- Neurodevelopmental considerations for transcranial magnetic stimulation trials in youth.Neuropsychopharmacology : official publication of the American College of Neuropsychopharmacology · 2026Review
- Patient and Public Involvement in Paediatric Pragmatic Randomized Controlled Trials: A Mixed Methods Study.Children (Basel, Switzerland) · 2025Article
- Engaging in purposeful patient and public involvement with young people living with obesity: recommendations from the ARROWS residential weekend.Research involvement and engagement · 2025Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- Working with children and young people in research: Supportive practices and pathways to impact.Journal of child health care : for professionals working with children in the hospital and community · 2025Review
- Long-term outcome of oesophageal atresia in adolescence (TransEAsome): a national French cohort study protocol.BMJ open · 2025Article
- Protocol for an umbrella review of the state-of-science on public and patient involvement in health and social care research with children, young people and families.HRB open research · 2025Article
- A matrix tool to foster patient engagement in children, adolescents and young adults: report from a multistakeholder workshop.Research involvement and engagement · 2024Article
- Integration of patient and public involvement in a doctoral research study using the research cycle.Research involvement and engagement · 2024Article
- MyHospitalVoice - a digital tool co-created with children and adolescents that captures patient-reported experience measures: a study protocol.Research involvement and engagement · 2024Review
- Patient, caregiver and other knowledge user engagement in consensus-building healthcare initiatives: a scoping review protocol.BMJ open · 2024Article
- Conducting Drug Treatment Trials in Children: Opportunities and Challenges.Pharmaceutical medicine · 2024Review
- Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.Cancer reports (Hoboken, N.J.) · 2024Article
- The League: A person-centred approach to the development of social robotics for paediatric anxiety.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Scoping the Priorities and Concerns of Parents: Infodemiology Study of Posts on Mumsnet and Reddit.Journal of medical Internet research · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Listening to, and acting on, the voices of children and families during clinical research and innovation is fundamental to ensuring enhanced pediatric health care, medicines development, and technological advances. While this is often discussed as an important step in ensuring patient-centered care, involving children and families across the life cycle of clinical research is not currently routine. The pediatric research community needs to address how to meaningfully involve children and families if they are to succeed in designing clinical research that suits the needs of pediatric patients and their families. This paper describes how an international community working under the umbrella International Children's Advisory Network (iCAN) and European Young Person's Advisory Group Network (eYPAGnet) has involved children and families in the design and delivery of pediatric clinical research. It offers practical solutions through various case studies assessed against seven patient engagement quality criteria within the Patient Engagement Quality Guidance (PEQG) tool, highlighting some of the lessons learnt from involving and engaging with children and families across different stages of clinical research, including pediatric trials for drug development programs.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.