ArticleJournal of the American Medical Informatics Association : JAMIA2022
"It's a mess sometimes": patient perspectives on provider responses to healthcare costs, and how informatics interventions can help support cost-sensitive care decisions.
Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Preferences for AI-Enabled Health Care Technologies: Systematic Review of Discrete Choice Experiments and Reporting Quality Assessment Using the DIRECT Checklist.Journal of medical Internet research · 2026Pooled it
- Factors Influencing Healthcare-Seeking Preferences Among Patients in County Medical Consortium in China: A Discrete Choice Experiment.Patient preference and adherence · 2026Article
- Perceived Barriers and Supports to Medication Adherence in Type 2 Diabetes: A Qualitative Study of Patients with and without a Zero-Dollar Copay Health Plan Benefit.Patient preference and adherence · 2026Article
- The administrative burden of medication affordability resources: an environmental scan with implications for health informatics to advance health equity.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- Social Marketing Perspective on Participant Recruitment in Informatics-Based Intervention Studies.AIDS and behavior · 2024Article
- Coping strategies adopted by frontline nurses in dealing with COVID-19 patients in a developing country during the pandemic: A qualitative study.Nursing open · 2023Article
- Advance directives completion and hospital out-of-pocket expenditures.Journal of hospital medicine · 2022Article
- Centering the patient in informatics applications.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Health informatics interventions to minimize out-of-pocket medication costs for patients: what providers want.JAMIA open · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
objectiveWe investigated patient experiences with medication- and test-related cost conversations with healthcare providers to identify their preferences for future informatics tools to facilitate cost-sensitive care decisions. MATERIALS AND
methodsWe conducted 18 semistructured interviews with diverse patients (ages 24-81) in a Midwestern health system in the United States. We identified themes through 2 rounds of qualitative coding.
resultsPatients believed their providers could help reduce medication-related costs but did not see how providers could influence test-related costs. Patients viewed cost conversations about medications as beneficial when providers could adjust medical recommendations or provide resources. However, cost conversations did not always occur when patients felt they were needed. Consequently, patients faced a "cascade of work" to address affordability challenges. To prevent this, collaborative informatics tools could facilitate cost conversations and shared decision-making by providing information about a patient's financial constraints, enabling comparisons of medication/testing options, and addressing transportation logistics to facilitate patient follow-through. DISCUSSION: Like providers, patients want informatics tools that address patient out-of-pocket costs. They want to discuss healthcare costs to reduce the frequency of unaffordable costs and obtain proactive assistance. Informatics interventions could minimize the cascade of patient work through shared decision-making and preventative actions. Such tools might integrate information about efficacy, costs, and side effects to support decisions, present patient decision aids, facilitate coordination among healthcare units, and eventually improve patient outcomes.
conclusionTo prevent a burdensome cascade of work for patients, informatics tools could be designed to support cost conversations and decisions between patients and providers.
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Registered trials
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