ArticlePediatric nephrology (Berlin, Germany)2022
Caregiver perspectives of dialysis initiation for children with kidney disease: a qualitative study.
Article in Pediatric nephrology (Berlin, Germany), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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Who cites it
5 citing papers in PubMed.
- The unique challenges and coping strategies in pediatric emergency care: a narrative review.Translational pediatrics · 2026Review
- Kidney Replacement Therapy Within 12 Months of Childbirth in Australia.Kidney international reports · 2026Article
- Caregiver Perspectives for Pediatric Patients with Acute Kidney Injury on Dialysis: A Narrative Review.Journal of multidisciplinary healthcare · 2026Review
- Pediatric Transplant Surgeons' Perspectives on Palliative Care for Children With Chronic Kidney Disease: A National Cross-Sectional Survey.Pediatric transplantation · 2025Article
- Bilateral renal agenesis: fetal intervention and outcomes.Pediatric nephrology (Berlin, Germany) · 2025Review
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundTo better support family-centered care surrounding dialysis initiation, greater understanding of caregiver experience is necessary.
methodsUsing thematic analysis, we conducted a secondary analysis of semi-structured interview data from a qualitative study of caregivers of children receiving dialysis recruited from 3 pediatric centers. Prominent themes in caregiver experience of caring for a child initiating dialysis were identified.
resultsThirty-five caregivers participated. Three major themes emerged from qualitative analysis: (1) parenting disrupted - caregivers experienced an acute disruption in their parenting role due to the unexpected, emergent circumstances and vast information accompanying their child's diagnosis; (2) redefining parenting - caregivers sought to reestablish their innate parental role and foster their evolving medical provider role through reassurance that their child could survive, communication with the medical team, and engaging in care plan development; and (3) leveraging dual identities - to positively impact their child's experience and enable flourishing, caregivers leveraged their established caregiver role and newly realized medical provider role through voicing their perspectives, watching over their child's care, and preparing for future changes in their child's health. If caregivers' evolution was not nurtured and enabled, acute fluctuations in their child's care could contribute to future disruption and need to restore their parental role. However, if caregiver development was fostered, caregivers acquired increased ability to prepare for vacillations in their child's care.
conclusionsImproving delivery of family-centered care and support of caregivers at dialysis initiation will require directed efforts by nephrology care teams to foster caregiver evolution and resilience and respond to the family's changing experience of kidney disease. A higher resolution version of the Graphical abstract is available as Supplementary information.
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