ArticleHealth research policy and systems2022
The MULTI-ACT model: the path forward for participatory and anticipatory governance in health research and care.
Article in Health research policy and systems, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 31 citations in OpenAlex.
- The Use of Patient-Reported Outcome Measures in Developmental Age: A Complementary Tool for Pediatric Multiple Sclerosis Prognosis.Neurology and therapy · 2026Review
- Digital patient experience tools in multiple sclerosis: a landscape analysis of the global Patient-Reported Outcomes in Multiple Sclerosis (PROMS) initiative.EClinicalMedicine · 2026Article
- Prenatal therapies: a Points to Consider framework for responsible innovation.BMC medical genomics · 2025Review
- We need to engage representative patients' community rather than 'expert patients' to increase impact of research in the era of personalized medicine: Commentary.Multiple sclerosis (Houndmills, Basingstoke, England) · 2025Article
- Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine.Neurology and therapy · 2025Article
- Innovative multidisciplinary tool for screening bowel and bladder symptoms in multiple sclerosis.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025Article
- Enhancing patients' role in scientific writing: insights from a global participatory approach with people with multiple sclerosis.Research involvement and engagement · 2025Article
- Artificial intelligence and science of patient input: a perspective from people with multiple sclerosis.Frontiers in immunology · 2025Article
- Responsible research impact: Ethics for making a difference.Open research Europe · 2025Article
- Using patient-generated health data more efficient and effectively to facilitate the implementation of value-based healthcare in the EU - Innovation report.Computational and structural biotechnology journal · 2024Article
- The refined Pathways to Cures Research Roadmap for multiple sclerosis cures.Multiple sclerosis (Houndmills, Basingstoke, England) · 2024Article
- From Innovator Result-driven to Multi-actor Impact-oriented Public-Private Partnerships: Integrating the Patient Perspective.Handbook of experimental pharmacology · 2024Review
- The global patient-reported outcomes for multiple sclerosis initiative: bridging the gap between clinical research and care - updates at the 2023 plenary event.Frontiers in neurology · 2024Review
- Comment on "Reflections on patient engagement by patient partners: How it can go wrong".Research involvement and engagement · 2023Article
- Monitoring and Predicting Health Status in Neurological Patients: The ALAMEDA Data Collection Protocol.Healthcare (Basel, Switzerland) · 2023Article
- Enhancing involvement of people with multiple sclerosis in clinical trial design.Multiple sclerosis (Houndmills, Basingstoke, England) · 2023Review
- Shared Decision-Making to Improve Health-Related Outcomes for Adults with Stroke Disease.Healthcare (Basel, Switzerland) · 2023Article
- Collective health research assessment: developing a tool to measure the impact of multistakeholder research initiatives.Health research policy and systems · 2022Article
- A Systematic Review of Patient Engagement Experiences in Brain Disorders.Patient related outcome measures · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 3 institutions in 1 country.
Funding
Abstract
The COVID-19 pandemic has unmasked even more clearly the need for research and care to form a unique and interdependent ecosystem, a concept which has emerged in recent years. In fact, to address urgent and unexpected missions such as "fighting all together the COVID-19 pandemic", the importance of multi-stakeholder collaboration, mission-oriented governance and flexibility has been demonstrated with great efficacy. This calls for a policy integration strategy and implementation of responsible research and innovation principles in health, promoting an effective cooperation between science and society towards a shared mission. This article describes the MULTI-ACT framework and discusses how its innovative approach, encompassing governance criteria, patient engagement and multidisciplinary impact assessment, represents a holistic management model for structuring responsible research and innovation participatory governance in brain conditions research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.