ArticleBMC health services research2022
A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer.
Article in BMC health services research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Experiences of informal caregivers supporting individuals with upper gastrointestinal cancers: a systematic review.BMC health services research · 2024Pooled it
- Review
- Revealing the gaps: unwarranted variations and multidisciplinary solutions in Victorian oesophagogastric cancer care - A mixed-methods analysis.BMC health services research · 2026Article
- A Grounded Theory of the Lived Experiences of People with Pancreatic Cancer in Northern Ireland: Study Protocol.Healthcare (Basel, Switzerland) · 2025Article
- Review
- PanSupport: a community model of cancer supportive care provision.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Understanding Unwarranted Variation in Care for Victorian Oesophagogastric Cancer Patients Using Linked Data: A Comparative Analysis Between 2012-2016 and 2017-2021.ANZ journal of surgery · 2025Article
- Supportive Care Needs and Related Interventions in Patients with Pancreatic Cancer and Their Informal Caregivers: A Scoping Review.Journal of gastrointestinal cancer · 2025Article
- Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis.International journal of community based nursing and midwifery · 2025Article
- Article
- A Qualitative Study on the Supportive Care Needs Preferences of Older Colorectal Cancer Patients: Insights from Patient Experiences.Patient preference and adherence · 2025Article
- Characteristics of patients diagnosed with pancreatic cancer who access palliative care: An observational study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Observational
Corrections and comments
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Authors and funding
12 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPancreatic and oesophagogastric (OG) cancers have a dismal prognosis and high symptom burden, with supportive care forming an integral component of the care provided to patients. This study aimed to explore the supportive care experiences of patients and caregivers living with pancreatic and OG cancers in order to identify perceived opportunities for improvement.
methodsSemi-structured individual interviews were conducted with people living with pancreatic and OG cancers, and their caregivers, across Victoria, Australia during 2020. Interviews were thematically analysed to identify common themes.
resultsForty-one participants were interviewed, including 30 patients and 11 caregivers. Three overarching themes, each with multiple sub-themes, were identified: (i) inadequate support for symptoms and issues across the cancer journey (ii) caregiver's desire for greater support, and (iii) a multidisciplinary care team is the hallmark of a positive supportive care experience. Generally, those who had access to a cancer care coordinator and/or a palliative care team recounted more positive supportive care experiences.
conclusionUnmet needs are prevalent across the pancreatic and OG cancer journey, with supportive care provided to varying levels of satisfaction. Greater awareness of and access to high-quality multidisciplinary support services is greatly desired by both patients with pancreatic and OG cancer and their caregivers.
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