ArticlePalliative medicine2022
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic.
Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers.
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Who cites it
30 citing papers in PubMed.
- Prolonged Grief Disorder, but Not Death From COVID-19, Elicits Public Stigma: A Vignette-Based Experiment.Omega · 2026Article
- Shifting to online and telephone bereavement support provision during the COVID-19 pandemic: A mixed methods study of bereavement service provider perspectives and lessons learnt for current practice.Palliative medicine · 2026Article
- Quality of Dying Among Institutionalised Nursing Home Residents From the Caregivers' Perspective: A Mixed-Methods Study.Journal of advanced nursing · 2026Article
- Good death: A critical essay on the concept in global palliative and end of life care.Palliative care and social practice · 2026Article
- Support needs, support use and perceived helpfulness of support in a cohort of people bereaved during the COVID-19 pandemic: insights from a longitudinal survey.Frontiers in public health · 2026Article
- A qualitative exploration of the impact of healthcare pre- and post-death on bereavement experiences.Palliative & supportive care · 2025Article
- Unravelling the complexities: a scoping review of the collateral effects on bereaved relatives during and beyond the COVID-19 pandemic.BMC palliative care · 2025Article
- Loss and Grief Among Bereaved Family Members During COVID-19 in Brazil: A Grounded Theory Analysis.Behavioral sciences (Basel, Switzerland) · 2025Article
- Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data.BMC palliative care · 2025Article
- A rapid review of the evidence for online interventions for bereavement support.Palliative medicine · 2025Review
- "I have never felt so alone and vulnerable" - A qualitative study of bereaved people's experiences of end-of-life cancer care during the Covid-19 pandemic.BMC palliative care · 2024Article
- Providing 'professionalism with compassion'; how the time for caring communication can improve experiences at the end-of-life at home, findings from a realist evaluation.BMC palliative care · 2024Article
- Grief in Children in the Aftermath of the COVID-19 Pandemic.Current psychiatry reports · 2024Review
- Socioeconomic Status, Palliative Care, and Death at Home Among Patients With Cancer Before and During COVID-19.JAMA network open · 2024Article
- Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study.Palliative medicine · 2024Article
- Death Unpreparedness Due to the COVID-19 Pandemic: A Concept Analysis.Healthcare (Basel, Switzerland) · 2024Review
- Community engagement in a seaside town: evaluation of Good Grief Weston festival.Palliative care and social practice · 2024Article
- Influence of loss- and restoration-oriented stressors on grief in times of COVID-19.Scientific reports · 2023Article
- Article
- Hospice and Palliative Care during Disasters: A Systematic Review.Healthcare (Basel, Switzerland) · 2023Review
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Authors and funding
11 authors.
Funding
Abstract
backgroundExperiences of end-of-life care and early bereavement during the COVID-19 pandemic are poorly understood.
aimTo identify clinical and demographic risk factors for sub-optimal end-of-life care and pandemic-related challenges prior to death and in early bereavement, to inform clinical practice, policy and bereavement support.
designOnline national survey of adults bereaved in the UK (deaths between 16 March 2020 and 2 January 2021), recruited via media, social media, national associations and organisations. SETTING/
participants711 participants, mean age 49.5 (SD 12.9, range 18-90). 628 (88.6%) were female. Mean age of the deceased was 72.2 (SD 16.1, range miscarriage to 102 years). 311 (43.8%) deaths were from confirmed/suspected COVID-19.
resultsDeaths in hospital/care home increased the likelihood of poorer experiences at the end of life; for example, being unable to visit or say goodbye as wanted (
conclusionsFour clear risk factors were found for poorer end-of-life care and pandemic-related challenges in bereavement: place, cause and expectedness of death, and relationship to the deceased.
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