ArticleJournal of medical Internet research2022
The 21st Century Cures Act and Multiuser Electronic Health Record Access: Potential Pitfalls of Information Release.
Article in Journal of medical Internet research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it, 59 citations in OpenAlex.
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- Safeguarding patient privacy in eHealth systems: Bridging theory and practice through a scoping review and healthcare survey.PLOS digital health · 2026Article
- Patient Portal Access and Missed Medical Appointments: A Case-Control Study.Journal of patient experience · 2026Article
- A pilot feasibility study of human-centered design for cirrhosis care: Development and pilot testing of SMARTLiver prototype, a FHIR-based clinical decision support system for hepatology.PLOS digital health · 2026Article
- Beyond Keywords: A Qualitative Study of Context-Dependent Stigmatizing Language in Clinical Documentation from a Large, Multi-Payer Home Healthcare Agency.Home health care management & practice · 2025Article
- Proceedings of the Association for Pathology Informatics Bootcamp 2023: Ethics, equity, and regulations.Journal of pathology informatics · 2025Article
- Re-Envisioning Electronic Health Records to Optimize Patient-Centered Cancer Care, Quality, Surveillance, and Research.JCO oncology practice · 2025Article
- A novel approach to patient portal activation data to power equity improvements.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Development of Recommendations for the Digital Sharing of Notes With Adolescents in Mental Health Care: Delphi Study.JMIR mental health · 2024Article
- Real-Time Electronic Patient Portal Use Among Emergency Department Patients.JAMA network open · 2024Article
- Shifting Mindsets: The Impact of a Patient Portal on Functioning and Recovery in a Mental Health Setting.Canadian journal of psychiatry. Revue canadienne de psychiatrie · 2024Article
- Family Perception of OpenNotes in the Neonatal Intensive Care Unit.Applied clinical informatics · 2024Article
- The Ethics of Risk Prediction for Psychosis and Suicide Attempt in Youth Mental Health.The Journal of pediatrics · 2023Review
- Variation in pediatric and adolescent electronic health data sharing practices under the 21st Century Cures Act.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Patient and Health Care Provider Perspectives on Patient Access to Test Results via Web Portals: Scoping Review.Journal of medical Internet research · 2023Article
- Electronic Health Record Adolescent Confidentiality in a Safety Net Setting.Applied clinical informatics · 2023Article
- Artificial Intelligence to Improve Patient Understanding of Radiology Reports.The Yale journal of biology and medicine · 2023Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
Although the Office of The National Coordinator for Health Information Technology's (ONC) Information Blocking Provision in the Cures Act Final Rule is an important step forward in providing patients free and unfettered access to their electronic health information (EHI), in the contexts of multiuser electronic health record (EHR) access and proxy access, concerns on the potential for harm in adolescent care contexts exist. We describe how the provision could erode patients' (both adolescent and older patients alike) trust and willingness to seek care. The rule's preventing harm exception does not apply to situations where the patient is a minor and the health care provider wishes to restrict a parent's or guardian's access to the minor's EHI to avoid violating the minor's confidentiality and potentially harming patient-clinician trust. This may violate previously developed government principles in the design and implementation of EHRs for pediatric care. Creating legally acceptable workarounds by means such as duplicate "shadow charting" will be burdensome (and prohibitive) for health care providers. Under the privacy exception, patients have the opportunity to request information to not be shared; however, depending on institutional practices, providers and patients may have limited awareness of this exception. Notably, the privacy exception states that providers cannot "improperly encourage or induce a patient's request to block information." Fearing being found in violation of the information blocking provisions, providers may feel that they are unable to guide patients navigating the release of their EHI in the multiuser or proxy access setting. ONC should provide more detailed guidance on their website and targeted outreach to providers and their specialty organizations that care for adolescents and other individuals affected by the Cures Act, and researchers should carefully monitor charting habits in these multiuser or proxy access situations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.