ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.
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Who cites it
32 citing papers in PubMed.
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- The Value and Challenges of Stakeholder Engagement in Rehabilitation Learning Health Systems: A Qualitative Pilot Study of Rehabilitation Directors.Learning health systems · 2026Article
- Patient and Designer Collaboration in Cocreating Technical Innovations in a Hospital-Based Makerspace: Qualitative Interview Study.JMIR human factors · 2026Article
- Methods of Engaging Interest-Holders in Healthcare Evidence Syntheses: A Scoping Review.Cochrane evidence synthesis and methods · 2026Review
- Creating an integrated innovation system to enable the adaptation and uptake of health-system innovations in Canada: insights from citizen panels and a national stakeholder dialogue.Health research policy and systems · 2025Article
- Engagement of People With Lived Experience in Spinal Cord Injury to Address Innovation Priorities.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- Measuring impacts of patient and public involvement and engagement (PPIE): a narrative review synthesis of review evidence.Research involvement and engagement · 2025Review
- "We're all in it together": uniting a diverse range of professionals and people with lived experience within the development of a complex, theory-based paediatric speech and language therapy intervention.Research involvement and engagement · 2025Article
- Integrating patient and public involvement during the COVID-19 pandemic: lessons from COVID-clinical neuroscience study.Research involvement and engagement · 2025Article
- What do patients and informal caregivers value in IBD care? A narrative inquiry.BMC health services research · 2025Article
- People Living With Dementia and Their Families as Educators for Social Justice.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Integrating patient and public involvement into co-design of healthcare improvement: a case study in maternity care.BMC health services research · 2025Article
- Patient and public involvement in the co-design and assessment of unobtrusive sensing technologies for care at home: a user-centric design approach.BMC geriatrics · 2025Article
- Towards development of guidelines for harnessing implementation science for suicide prevention: an international Delphi expert consensus study.BMJ public health · 2025Article
- Views and Uses of Sepsis Digital Alerts in National Health Service Trusts in England: Qualitative Study With Health Care Professionals.JMIR human factors · 2024Article
- Practices and Barriers in Developing and Disseminating Plain-Language Resources Reporting Medical Research Information: A Scoping Review.The patient · 2024Article
- Strategies for engaging older adults and informal caregivers in health policy development: A scoping review.Health research policy and systems · 2024Article
- Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end-of-life.Health expectations : an international journal of public participation in health care and health policy · 2024Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient and public involvement (PPI) has become increasingly important in the development, delivery and improvement of healthcare. PPI is used in healthcare innovation; yet, how it is used has been under-reported. The aim of this scoping review is to identify and map the current available empirical evidence on the role of PPI during different stages of healthcare innovation.
methodsThe scoping review was conducted in accordance with PRISMAScR and included any study published in a peer-reviewed journal between 2004 and 2021 that reported on PPI in healthcare innovation within any healthcare setting or context in any country. The following databases were searched: Medline, EMBASE, CINAHL, PsycInfo, HMIC and Google Scholar. We included any study type, including quantitative, qualitative and mixed-method studies. We excluded theoretical frameworks, conceptual, scientific or grey literature as well as discussion and opinion papers.
resultsOf the 87 included studies, 81 (93%) focused on or were conducted by authors in developed countries. A wide range of conditions were considered, with more studies focusing on mental health (n = 18, 21%) and cancer care (n = 8, 9%). The vast majority of the studies focused on process and service innovations (n = 62, 71%). Seven studies focused on technological and clinical innovations (8%), while 12 looked at both technological and service innovations (14%). Only five studies examined systems innovation (5%) and one study looked across all types of innovations (1%). PPI is more common in the earlier stages of innovation, particularly problem identification and invention, in comparison to adoption and diffusion.
conclusionHealthcare innovation tends to be a lengthy process. Yet, our study highlights that PPI is more common across earlier stages of innovation and focuses mostly on service innovation. Stronger PPI in later stages could support the adoption and diffusion of innovation. PATIENT OR PUBLIC CONTRIBUTION: One of the coauthors of the paper (S. S.) is a service user with extensive experience in PPI research. S. S. supported the analysis and writing up of the paper.
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