ArticleInternational journal of developmental disabilities2022
Parental experiences raising children with autism spectrum disorder in Eastern Europe: a scoping review.
Article in International journal of developmental disabilities, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.
- Systematic Review of Autism in Women: Invisibilised Profiles and Gender Bias.Revista de neurologia · 2026Pooled it
- Quality of Life in Hungarian Parents of Autistic Individuals.Journal of autism and developmental disorders · 2025Article
- Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis.Autism : the international journal of research and practice · 2025Article
- Caregivers' Experience of Supporting Deaf Adults with Mental Health Disorders in Ghana.International journal of environmental research and public health · 2025Article
- Autism in Serbia: insights into parental experiences, support networks, and systemic obstacles.International journal of developmental disabilities · 2025Article
- A closer look into maternal psychological distress and the associated factors: the case of autism and chronic conditions.Frontiers in psychiatry · 2025Article
- Autism Spectrum Disorders: Etiology, Epidemiology, and Challenges for Public Health.Medical science monitor : international medical journal of experimental and clinical research · 2024Review
- Lived Experiences of Iranian Parents of Children with Autism Spectrum Disorder: A Systematic Review.Iranian journal of public health · 2023Review
- A model of internalized stigma in parents of individuals with disabilities.International journal of developmental disabilities · 2022Article
- Family quality of life: perceptions of parents of children with developmental disabilities in Bosnia and Herzegovina.International journal of developmental disabilities · 2022Article
- Perceived Stigma Among Serbian Parents of Children with Autism Spectrum Disorder and Children with Physical Disabilities: Validation of a New Instrument.Journal of autism and developmental disorders · 2021Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Parents of children with autism spectrum disorder (ASD) are often at greater risk of experiencing stress and lower quality of life, in comparison to parents of typically developing (TD) children and other developmental disabilities. Despite vast literature on parental experiences in Western countries, little is known about this topic in Eastern Europe. Thus, we aimed to map studies that addressed parental experiences of children with ASD in Eastern Europe using the Double ABCX theoretical framework. The Double ABCX Model of family adaptation describes how families responds to stressors over time, based on the intercorrelation of available resources, coping mechanisms and appraisal of stressors. Following a scoping review methodological framework, we conducted a comprehensive search of three databases. We ultimately included 15 peer-reviewed studies in the review. Within each study, we examined Double ABCX Model factors. The studies were conducted in nine Eastern European countries and included parents of children and adults with ASD. Consistent with studies conducted in Western countries, parents of children with ASD expressed more personal and family challenges and greater maladaptation compared to parents of TD children. Moreover, families reported lower satisfaction with quality of life and more health problems. The small number of included papers from nine countries suggests that parental experiences of children with ASD in Eastern Europe are overlooked in the literature. Future research should explore findings from this review that differed from the Western literature, including contributing factors to parental adaption in families in Eastern Europe.
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