ArticleScandinavian journal of primary health care2022
Prevalence, content and significance of advance care planning in nursing home patients.
Article in Scandinavian journal of primary health care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 11 citations in OpenAlex.
- Cocreation of a Digital Tool for Proactive End-of-Life Communication: Protocol for a Participatory Action Research Project.JMIR research protocols · 2026Article
- Health and care service utilisation in the last year of life before non-sudden death in Wales, 2014-2023, by palliative care registration: a population-based retrospective cohort study.The Lancet regional health. Europe · 2025Article
- Treatment limitations and participation in elderly patients - the gap between medical-ethical guidelines and clinical practice: a cross sectional-study from Sweden.BMC geriatrics · 2025Article
- Home ventilation patients: associations of having advance care plans with end-of-life healthcare utilisation.Journal of thoracic disease · 2025Article
- Implementation, Processes and Outcomes of Advance Care Planning: A Culturally and Contextually Appropriate Programme Theory Developed in Chinese Long-Term Care Facilities.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Advanced Care Plan Among Older Chinese in Residential Aged Care: A Retrospective Review.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2025Article
- Ethical challenges causing moral distress: nursing home staff's experiences of working during the COVID-19 pandemic.Scandinavian journal of primary health care · 2024Article
- Implementing advance care planning in Swedish healthcare settings - a qualitative study of professionals' experiences.Scandinavian journal of primary health care · 2023Article
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveStudies on advance care planning in nursing homes are rare, and despite their demonstrated favourable effects on end-of-life care, advance care plans are often lacking. Therefore, we wished to explore: (i) the prevalence of advance care plans in a Swedish nursing home setting using two different definitions, (ii) the content of advance care plans, (iii) adherence to the content of care plans and (iv) possible associations between the presence of advance care planning and background characteristics, physician attendance and end-of-life care.
designRetrospective chart review.
settingTwenty-two nursing homes in Sweden. SUBJECTS: A total of 367 deceased patients (included between 1 June 2018 and 23 May 2020) who had lived in nursing homes.
main outcome measuresElectronic health record data on the prevalence of advance care plans with two different definitions and variables regarding background characteristics, physician attendance and end-of-life care, were collected.
resultsOf the study population, 97% had a limited care plan (ACP I) documented. When using the comprehensive definition (ACP II), also including patient's preferences and involvement of family members in advance care planning, the prevalence was 77%. Patients with dementia more often had care plans, and a higher physician attendance was associated with presence of advance care plans. Prescription of palliative drugs and information to family members of the patient's deterioration and impending death were more common in patients with care plans compared to those where such plans were missing. There was adherence to the care plan content.
conclusionIn contrast to previous research, this study showed a high prevalence of advance care plans in nursing home patients. Patients with care plans more frequently received prescriptions of palliative drugs and their family members were informed to a greater extent about the patient's deterioration and impending death compared to those without care plans. These aspects are often seen as vital components of good palliative care.Key pointsStudies on advance care planning in nursing homes are rare, and despite their demonstrated positive effects on end-of-life care, advance care plans are often lacking.The present study revealed a high prevalence of advance care plans (77-97% depending on definition) in nursing home patients.Patients with dementia more often had advance care plans, and a higher physician attendance was associated with presence of care plans.Advance care plans were positively associated with components of good palliative care, such as prescriptions of palliative drugs and information to family.
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