Evidence map›Paper›PMID 35170064›Full record

ArticleChild: care, health and development2022

Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: A scoping review.

Shelley Doucet, Jennifer Splane, Alison Luke, Kathryn E Asher, Sydney Breneol, Jackie Pidduck, Amy Grant, Emilie Dionne, Cathie Scott, Lisa Keeping-Burke and 3 more

Open access · hybridAbstract readScoping Review
In one paragraph

Article in Child: care, health and development, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed
8.2field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 30 citations in OpenAlex.

  1. Article
  2. Review
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  5. Transitioning from paediatric to adult healthcare: Exploring the practices and experiences of care providers.Journal of child health care : for professionals working with children in the hospital and community · 2025
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  6. Review
  7. A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations.Health expectations : an international journal of public participation in health care and health policy · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 8 institutions in 2 countries.

Shelley DoucetCentre for Research in Integrated Care, University of New Brunswick, Saint John, New Brunswick, Canada.ORCID 0000-0003-4420-8199
Jennifer SplaneCentre for Research in Integrated Care, University of New Brunswick, Saint John, New Brunswick, Canada.ORCID 0000-0002-5433-8475
Alison LukeCentre for Research in Integrated Care, University of New Brunswick, Saint John, New Brunswick, Canada.
Kathryn E AsherCentre for Research in Integrated Care, University of New Brunswick, Saint John, New Brunswick, Canada.ORCID 0000-0003-0111-2795
Sydney BreneolSchool of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada.ORCID 0000-0001-6709-2577
Jackie PidduckIWK Health Centre, Halifax, Nova Scotia, Canada.
Amy GrantNova Scotia Health Authority, Halifax, Nova Scotia, Canada.
Emilie DionneSt. Mary's Research Centre & Family Medicine, McGill University, Montreal, Quebec, Canada.
Cathie ScottUniversity of Calgary, Calgary, Alberta, Canada.
Lisa Keeping-BurkeDepartment of Nursing and Health Sciences, University of New Brunswick, Saint John, New Brunswick, Canada.
Jessie-Lee McIsaacFaculty of Education and Department of Child and Youth Study, Mount Saint Vincent University, Halifax, Nova Scotia, Canada.ORCID 0000-0002-9294-5313
Jan Willem GorterPediatric Rehabilitation Medicine, University Medical Centre Utrecht, Utrecht, The Netherlands.
Janet CurranSchool of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada.
University of New Brunswick · CADalhousie University · CAIzaak Walton Killam Health Centre · CAMcGill University Health Centre · CAMount Saint Vincent University · CANova Scotia Health Authority · CAUniversity Medical Center Utrecht · NLUniversity of Calgary · CA

Funding

Canadian Institutes of Health Research (CIHR)
6 · The paper itself

Abstract

backgroundAn increasing number of children have complex care needs (CCN) that impact their health and cause limitations in their lives. More of these youth are transitioning from paediatric to adult healthcare due to complex conditions being increasingly associated with survival into adulthood. Typically, the transition process is plagued by barriers, which can lead to adverse health consequences. There is an increased need for transitional care interventions when moving from paediatric to adult healthcare. To date, literature associated with this process for youth with CCN and their families has not been systematically examined.

objectivesThe objective of this scoping review is to map the range of programmes in the literature that support youth with CCN and their families as they transition from paediatric to adult healthcare.

methodsThe review was conducted in accordance with the Joanna Briggs Institute's methodology for scoping reviews. A search, last run in April 2021, located published articles in PubMed, CINAHL, ERIC, PsycINFO and Social Work Abstracts databases.

resultsThe search yielded 1523 citations, of which 47 articles met the eligibility criteria. A summary of the article characteristics, programme characteristics and programme barriers and enablers is provided. Overall, articles reported on a variety of programmes that focused on supporting youth with various conditions, beginning in the early or late teenage years. Financial support and lack of training for care providers were the most common transition program barriers, whereas a dedicated transition coordinator, collaborative care, transition tools and interpersonal support were the most common enablers. The most common patient-level outcome reported was satisfaction. DISCUSSION: This review consolidates available information about interventions designed to support youth with CCN transitioning from paediatric to adult healthcare. The results will help to inform further research, as well as transition policy and practice advancement.

Indexed as

Transition to Adult CareAdolescentAdultChildDelivery of Health CareHumansPatient Transfer

Identifiers

PMID35170064
PMCPMC9543843
OpenAlexW4213204989

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.