ArticleJournal of cancer survivorship : research and practice2023
"Both a life saver and totally shameful": young adult cancer survivors' perceptions of medical crowdfunding.
Article in Journal of cancer survivorship : research and practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed.
- Sources of informal financial support among adolescent and young adult cancer survivors: a mixed methods analysis from the HIAYA CHAT study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Trial
- Characteristics of Crowdfunding Campaigns for Proton Therapy.International journal of radiation oncology, biology, physics · 2026Article
- Adolescent and young adult cancer survivor experiences of financial toxicity: a scoping review.Journal of cancer survivorship : research and practice · 2026Review
- "We will get to…assist the staff of the hospital": comparatively exploring the motivations of pre-medical and medical students from Global North countries for seeking to participate in Ghanaian medical missions.BMC health services research · 2026Article
- Article
- Stress and Support Present in Medical Crowdfunding in Pediatric Cancer.Cancer reports (Hoboken, N.J.) · 2025Article
- GoFundMe®: Crowdfunding Among Young Adult Patients With Cancer.Clinical journal of oncology nursing · 2025Article
- Differences in cancer-related crowdfunding between transgender or gender diverse and cisgender LGBTQ+ cancer campaigns: a mixed-methods analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Medical crowdfunding for cancer patients seeking fertility treatments: a cross-sectional analysis.F&S reports · 2025Article
- Natural Language Processing-Assessed Unmet Medical and Social Needs in Cancer Crowdfunding Stories.JAMA oncology · 2024Article
- Crowdfunding for Complementary and Alternative Cancer Treatments in Tijuana, Mexico: Content Analysis.JMIR cancer · 2024Article
- LGBTQ+ inequity in crowdfunding cancer costs: The influence of online reach and LGBTQ+ state policy.Cancer medicine · 2024Article
- The Use of Medical Crowdfunding to Mitigate the Personal Costs of Serious Chronic Illness: Scoping Review.Journal of medical Internet research · 2023Article
- Article
- Banking on Fertility Preservation: Financial Concern for Adolescent and Young Adult Cancer Patients Considering Oncofertility Services.Journal of adolescent and young adult oncology · 2023Article
- The Success of Cancer Crowdfunding Campaigns: Project and Text Analysis.Journal of medical Internet research · 2023Article
- Struggling, helping and adapting: Crowdfunding motivations and outcomes during the early US COVID-19 pandemic.Sociology of health & illness · 2023Article
- Update and new advances in fertility preservation and cancer.CA: a cancer journal for cliniciansReview
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
purposeYoung adults (YAs) diagnosed with cancer face high financial burden at a time in their lives when they are financially vulnerable. Some turn to medical crowdfunding, that is, using social media and other means to raise funds or resources to offset medical and usual life expenses. Major research gaps exist regarding the experiences of those who pursued crowdfunding. Thus, the study purpose was to describe the perceptions of, and experiences with, medical crowdfunding among a sample of YA cancer survivors.
methodsIn February 2021, we distributed an online survey to YAs with a history of a cancer diagnosis, who had received grants from an organization that offers financial assistance. We calculated descriptive statistics on the crowdfunding sample and employed thematic analysis to analyze the open-ended questions.
resultsIn this sample (N = 113), 46 YA cancer survivors had engaged in medical crowdfunding and shared their perceptions and experiences. Our central theme, "The Crowdfunding Compromise" captures the trade-offs participants faced, which included subthemes of "crowdfunding as useful/helpful," "factors associated with crowdfunding success," and "questioning the why?".
conclusionsAmong YA cancer survivors, medical crowdfunding brings shame and stigma in addition to financial support. YA cancer survivors demonstrate resilience in their attempts to find individual solutions to financial problems created by unchecked health care costs, the US health insurance infrastructure, and lack of legislation. IMPLICATIONS FOR CANCER SURVIVORS: This study fills an important gap in understanding individual-level crowdfunding experiences. Implications include system-level approaches to addressing cancer-related financial burden and potential worsening of existing disparities through medical crowdfunding.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.