ArticleDementia (London, England)2022
Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programme.
Article in Dementia (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Methods and approaches to facilitate inclusion of the views, perspectives and preferences of people with moderate-to-severe dementia in research: A narrative systematic review.International journal of older people nursing · 2024Pooled it
- Rehabilitation needs of older adults with cognitive impairment following ischemic stroke: a qualitative study.Annals of medicine · 2026Article
- Self-reporting quality of life in mild-to-moderate Alzheimer's disease and Lewy body dementia: Comparing capability and health-focused measures using response process validation.Social science & medicine (1982) · 2026Article
- Developing a national strategy to support implementation of reablement for community-dwelling people living with dementia.Implementation science communications · 2026Article
- Self-reported quality of life in progressive cognitive decline-let's not throw the baby out with the bathwater.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Using acousmatic storytelling to facilitate communication and social interactions in people living with dementia: An iterative exploratory 12-week study.Australasian journal on ageing · 2025Article
- Methods for Involving People With Dementia in Health Policy and Guideline Development: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Everyday life and boredom of people living with dementia in residential long-term care: a merged methods study.BMC geriatrics · 2024Article
- Article
- A visual approach to facilitating conversations about supportive care options in the context of cognitive impairment.Journal of biomedical informatics · 2024Article
- Patient and Public Involvement in Technology-Related Dementia Research: Scoping Review.JMIR aging · 2024Article
- Meaningful patient and public engagement in dissemination-embedding co-production in dementia research.Frontiers in dementia · 2024Article
- Article
- Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Interdisciplinary Approaches to Deal with Alzheimer's Disease-From Bench to Bedside: What Feasible Options Do Already Exist Today?Biomedicines · 2022Review
- The physician's Alzheimer's disease management guide: Early detection and diagnosis of cognitive impairment, Alzheimer's disease and related dementia.AIMS public health · 2022Article
- A qualitative study on virtual reality and psychosocial needs of residents living with dementia in long-term care.Digital healthArticle
- Article
- The Changes of Quality of Life, Behavioural Problems, and Cognition Among Older Adults With Severe Dementia Under Social Distancing Measures in Residential Homes.American journal of Alzheimer's disease and other dementiasArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesDementia can affect language processing and production, making communication more difficult. This creates challenges for including the person's perspective in research and service evaluation. This study aims to identify methods, tools and approaches that could facilitate meaningful communication with people with moderate-to-severe dementia and support the inclusion of their perspectives.
methodsThis qualitative study was conducted as part of the IDEAL programme and involved in-depth, semi-structured interviews with 17 dementia research and/or care professionals with expertise in communication. Transcripts were analysed using framework analysis.
findingsThree main themes each with sub-themes were identified: (1) Awareness, knowledge and experience; (2) Communication approach and (3) Personalization. A person-centred orientation based on getting to know the participant and developing a bi-directional exchange formed the fundamental context for effective communication. Building on this foundation, an approach using pictures, photographs or objects that are meaningful to the person and appropriate for that person's preferences and ability could help to facilitate conversations. The findings were integrated into a diagram illustrating how the topics covered by the themes interrelate to facilitate communication.
conclusionsUseful skills and approaches were identified to help researchers engage and work with people with moderate-to-severe dementia and ensure their perspective is included. These covered getting to know the participant, using a variety of tangible tools and interactional techniques and considering the environment and context of the conversation.
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