Evidence map›Paper›PMID 35155770›Full record

ReviewSAGE open nursing

Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers.

Vibeke Østergaard Steenfeldt, Lars Christian Aagerup, Anna Holm Jacobsen, Ulla Skjødt

Abstract readReview
In one paragraph

Review in SAGE open nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
33citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

33 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Trial
  4. Trial
  5. Exploring the experiences and needs in everyday life of spouse carers of persons with dementia.International journal of qualitative studies on health and well-being · 2026
    Article
  6. Observational
  7. Review
  8. Article
  9. Article
  10. Review
  11. Article
  12. Article
  13. Article
  14. Article
  15. Accessing Care Across Cultures: Qualitative Insights Into the Reality of Informal Caregivers From Ethnically Minoritised Groups.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  16. Article
  17. In-home respite care in dementia: An evolutionary concept analysis.International journal of nursing sciences · 2025
    Review
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Vibeke Østergaard SteenfeldtCenter for Nursing, University College Absalon, Roskilde, Denmark.ORCID https://orcid.org/0000-0002-2724-6815
Lars Christian AagerupCenter for Social Education, University College Absalon, Slagelse, Denmark.
Anna Holm JacobsenCenter for Nursing, University College Absalon, Slagelse, Denmark.
Ulla SkjødtCenter for Nursing, University College Absalon, Roskilde, Denmark.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe dementia disease affects both the family caregivers' health and social and psychological well-being. The aim of this review was to identify and describe the needs of family caregivers living with a person with dementia at home.

methodThe literature review, conducted using the matrix method, was also inspired by Thomas and Harden's thematic synthesis.

resultsThree themes were identified: (1) the family caregiver's new roles and relationships; (2) caregiver burdens; and (3) the caregiver's need for information and support.

conclusionWhen family caregivers gradually lose their reciprocal relationship with the person with dementia, and sometimes also with family and friends, the need for other kinds of social contact arises e.g. with others in a similar situation. They also need to have some respite to provide room to pursue their own interests and take care of their own health. Also, a high level of individually tailored information is needed.

Indexed as

caregiver burdencaregiver needsdementia carefamily caregivers

Identifiers

PMID35155770
PMCPMC8832314

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.