Evidence map›Paper›PMID 35155342›Full record

ArticleFrontiers in public health2021

What Does "Good" Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research.

Gary Hickey, Katie Porter, Doreen Tembo, Una Rennard, Martha Tholanah, Peter Beresford, David Chandler, Moses Chimbari, Tina Coldham, Lisa Dikomitis and 10 more

Abstract read
In one paragraph

Article in Frontiers in public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Article
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  3. Article
  4. Article
  5. Article
  6. A Co-Produced Stakeholder Workshop to Identify Key Time Points and Targets for Life-Course Prevention of Multiple Long-Term Conditions.Health expectations : an international journal of public participation in health care and health policy · 2025
    Review
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Gary HickeyWessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.
Katie PorterWessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.
Doreen TemboWessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.
Una RennardPublic Contributor, Oxfordshire, United Kingdom.
Martha TholanahAIDS Clinical Trial Group Clinical Research Site Community Advisory Board, Clinical Trials Research Centre, University of Zimbabwe, Harare, Zimbabwe.
Peter BeresfordSchool of Health Sciences, University of East Anglia, Norwich, United Kingdom.
David ChandlerThe Psoriasis and Psoriatic Arthritis Alliance, St Albans, United Kingdom.
Moses ChimbariSchool of Nursing and Public Health, College of Health Sciences, University of KwaZulu-Natal, Durban, South Africa.
Tina ColdhamNational Institute for Health Research Centre for Engagement and Dissemination, London, United Kingdom.
Lisa DikomitisKent and Medway Medical School, University of Kent and Canterbury Christ Church University, Canterbury, United Kingdom.
Biggy DziroAfrican Mental Health Research Initiative (AMARI), Harare, Zimbabwe.
Peter O EkiikinaFoundation for Open Development, Tororo, Uganda.
Maria I KhattakInstitute of Public Health & Social Sciences, Khyber Medical University, Peshawar, Pakistan.
Cristian R MontenegroWellcome Centre for Cultures and Environments of Health, University of Exeter, Exeter, United Kingdom.
Noni MumbaKEMRI Wellcome Trust Research Programme, Kilifi, Kenya.
Rosemary MusesengwaMedical Sciences Division, Department of Psychiatry, University of Oxford, Oxford, United Kingdom.
Erica NelsonHealth and Nutrition Cluster, The Institute of Development Studies, University of Sussex, Brighton, United Kingdom.
Clement NhunzviCollege of Health Sciences, University of Zimbabwe, Harare, Zimbabwe.
Caroline M RamirezSchool of Medicine and Public Health, Ateneo de Manila University, Pasig, Philippines.
Sophie StaniszewskaWarwick Research in Nursing, Warwick Medical School, University of Warwick, Coventry, United Kingdom.

Funding

Department of Health
6 · The paper itself

Abstract

Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does "good" CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what "good" CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what "good" CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.

Indexed as

Global HealthResearch PersonnelHumanspatient and public involvementpower dynamicsresearch relationshipsresearch stakeholdersrespecting community

Identifiers

PMID35155342
PMCPMC8830293

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.