Evidence map›Paper›PMID 35152892›Full record

ArticleBMC palliative care2022

Advance care planning in primary care: a retrospective medical record study among patients with different illness trajectories.

Yvonne A C Bekker, Ankie F Suntjens, Y Engels, H Schers, Gert P Westert, A Stef Groenewoud

Registry-linked trialAbstract read
In one paragraph

Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06046261 (Exploring the Impact of " ACP Board Game for Life" on Death Preparation and Anxiety in Patients With Stage 4 and 5 Chronic Kidney Diseases), which is not on this map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06046261 nacompletednot on this map

Exploring the Impact of " ACP Board Game for Life" on Death Preparation and Anxiety in Patients With Stage 4 and 5 Chronic Kidney Diseases: A Pilot Study

TypeinterventionalSponsorNational Cheng-Kung University HospitalRan2022 to 2023Enrolled69ConditionsChronic Kidney Disease, Chronic Renal Failure, Chronic Renal Insufficiency, End of Life CareArmsACP board game for life
3 · Its place in the literature

Who cites it

18 citing papers in PubMed.

  1. PEC innovation · 2026
    Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Attitudes to earlier advance care planning: a qualitative interview study in general practice.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026
    Article
  7. Article
  8. Article
  9. Advance care planning for adults with cancer.The Cochrane database of systematic reviews · 2025
    Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Observational
  17. Article
  18. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Yvonne A C BekkerRadboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, PO Box 9101, 6500, HB, Nijmegen, the Netherlands.
Ankie F SuntjensRadboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, PO Box 9101, 6500, HB, Nijmegen, the Netherlands.
Y EngelsDepartment of Anesthesiology, Radboud University Medical Center, Pain and Palliative Medicine, Nijmegen, the Netherlands.
H SchersDepartment of Primary and Community Care, Radboud University Medical Center, Nijmegen, the Netherlands.
Gert P WestertRadboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, PO Box 9101, 6500, HB, Nijmegen, the Netherlands.
A Stef GroenewoudRadboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, PO Box 9101, 6500, HB, Nijmegen, the Netherlands. stef.groenewoud@radboudumc.nl.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAdvance Care Planning (ACP) enables physicians to align healthcare with patients' wishes, reduces burdensome life-prolonging medical interventions, and potentially improves the quality of life of patients in the last phase of life. However, little objective information is available about the extent to which structured ACP conversations are held in general practice. Our aim was to examine the documentation of ACP for patients with cancer, organ failure and multimorbidity in medical records (as a proxy for ACP application) in Dutch general practice.

methodsWe chose a retrospective medical record study design in seven primary care facilities. Medical records of 119 patients who died non-suddenly (55 cancer, 28 organ failure and 36 multimorbidity) were analysed. Other variables were: general characteristics, data on ACP documentation, correspondence between medical specialist and general practitioner (GP), and healthcare utilization in the last 2 years of life.

resultsIn 65% of the records, one or more ACP items were registered by the GP. Most often documented were aspects regarding euthanasia (35%), the preferred place of care and death (29%) and concerns and hopes towards the future (29%). Median timing of the first ACP conversation was 126 days before death (inter-quartile range (IQR) 30-316). ACP was more often documented in patients with cancer (84%) than in those with organ failure (57%) or multimorbidity (42%) (p = 0.000). Patients with cancer had the most frequent (median 3 times, IQR 2-5) and extensive (median 5 items, IQR 2-7) ACP consultations.

conclusionDocumentation of ACP items in medical records by GPs is present, however limited, especially in patients with multimorbidity or organ failure. We recommend more attention for - and documentation of - ACP in daily practice, in order to start anticipatory conversations in time and address the needs of all people living with advanced conditions in primary care.

Indexed as

Advance Care PlanningQuality of LifeHumansMedical RecordsPrimary Health CareRetrospective StudiesAdvance care planningEnd of life careGeneral practiceGeneral practitionerMedical recordsPrimary care

Identifiers

PMID35152892
PMCPMC8842525

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.