ArticleThe Journal of pediatrics2022
Parent Health-Related Quality of Life for Infants with Congenital Anomalies Receiving Neonatal Intensive Care.
Article in The Journal of pediatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 27 citations in OpenAlex.
- The effect of a family-centered care program on the psychological outcomes of births with congenital malformations: A study protocol.Journal of education and health promotion · 2026Article
- "Ringleader who has no power": a qualitative study of parent uncertainty during a NICU admission unrelated to prematurity.Maternal health, neonatology and perinatology · 2025Article
- Caring for a Child with a Cleft Lip and/or Palate: A Narrative Review.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2025Review
- Health-related quality of life at 5 years of age for children born very preterm with congenital anomalies: a multi-national cohort study.Pediatric research · 2025Article
- Trajectory of parental health-related quality of life after neonatal hospitalization - a prospective cohort study.Health and quality of life outcomes · 2025Article
- QALYs and rare diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia.Health and quality of life outcomes · 2023Article
- Health-Related Qualities of Life in School-Aged Children with Bronchopulmonary Dysplasia.The Journal of pediatrics · 2023Observational
- Congenital Anomalies in Iran: National and Sub-National Analysis From 1990 to 2021.Sage open pediatricsArticle
Corrections and comments
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Authors and funding
7 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveTo examine factors associated with parent quality of life during and after neonatal intensive care unit (NICU) discharge among parents of infants with congenital anomalies admitted to the NICU. STUDY
designThis secondary analysis of 2 prospective cohort studies between 2016 and 2020 at a level IV NICU included parents of infants with major congenital anomalies receiving NICU care. The primary outcomes were parent health-related quality of life (HRQL) during the NICU stay and at 3 months post-NICU discharge.
resultsA total of 166 parent-infant dyads were enrolled in the study, 124 of which completed the 3-month follow-up interview. During the NICU stay, parent history of a mental health disorder (-13 points), earlier gestational age (-17 points), consultation by multiple specialists (-11 points), and longer hospital stay (-5 points) were associated with lower HRQL. Parents of infants with a neonatal surgical anomaly had higher HRQL (+4 points). At 3 months after NICU discharge, parent receipt of a psychology consult in the NICU, the total number of consultants involved in the child's care, and an infant with a nonsurgical anomaly were associated with lower parent HRQL. Parents of infants with a gastrostomy tube (-6 points) and those with hospital readmission (-5 points) had lower HRQL. Comparing same-parent differences in HRQL over time, parents of infants with anomalies did not show significant improvement in HRQL on discharge home.
conclusionParents of infants with congenital anomalies reported low HRQL at baseline and at discharge. Parents of infants with nonsurgical, medically complex anomalies requiring multispecialty care represent a vulnerable group who could be better supported during and after their NICU stay.
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