Evidence map›Paper›PMID 35148954›Full record

ArticleWomen's health issues : official publication of the Jacobs Institute of Women's Health

"It Would Have Been Nice to Have a Choice": Barriers to Contraceptive Decision-making among Women with Disabilities.

Willi Horner-Johnson, Krystal A Klein, Jan Campbell, Jeanne-Marie Guise

Abstract read
In one paragraph

Article in Women's health issues : official publication of the Jacobs Institute of Women's Health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
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  9. Sexual Health Literacy Among Adults With Intellectual Disabilities: A Scoping Review.Journal of intellectual disability research : JIDR · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Willi Horner-JohnsonInstitute on Development and Disability, Oregon Health & Science University, Portland, Oregon. Electronic address: hornerjo@ohsu.edu.
Krystal A KleinCambia Health Solutions, Inc., Portland, Oregon.
Jan CampbellDisability Rights Oregon, Portland, Oregon.
Jeanne-Marie GuiseDepartment of Obstetrics and Gynecology, Oregon Health & Science University, Portland, Oregon.

Funding

Oregon Clinical and Translational Research Institute - The National COVID Cohort Collaborative (N3C)UL1TR002369 · NCATS · OREGON HEALTH & SCIENCE UNIVERSITY · PI Cynthia D Morris, Christopher G. Slatore · 2017 to 2026
$78.4M
Oregon Clinical and Translational Research InstituteUL1TR000128 · NCATS · OREGON HEALTH & SCIENCE UNIVERSITY · PI ELLISON, DAVID H · 2012 to 2015
$28.7M
Oregon Patient Centered Outcomes Research K12 ProgramK12HS022981 · AHRQ · OREGON HEALTH & SCIENCE UNIVERSITY · PI GUISE, JEANNE-MARIE · 2014 to 2018
$4.1M
AHRQ HHS K12 HS022981NCATS NIH HHS UL1 TR000128NCATS NIH HHS UL1 TR002369
6 · The paper itself

Abstract

introductionEngaging in contraceptive decisions is an important part of reproductive health for women and other people with the capacity for pregnancy. However, not all individuals capable of pregnancy have equal access to information and/or opportunities to make fully informed decisions. The goal of this study was to understand barriers women with disabilities experience around contraceptive decision-making and whether these differ based on type of disability.

methodsWe conducted focus groups with 17 reproductive age adult women (aged 18-45 years). Focus groups were homogenous with regard to disability type and consisted of one group for each of the following disability categories: 1) physical disability, 2) intellectual and developmental disabilities, 3) blind or low vision, and 4) Deaf users of American Sign Language. Data were collected in the Portland, Oregon, metropolitan area during 2016-2017. We analyzed focus group transcripts using content analysis.

resultsBarriers to informed contraceptive decision-making emerged in five main thematic areas: 1) lack of information in accessible formats, 2) incomplete information about contraceptive side effects, 3) limited clinician knowledge and relevant research specific to the care of women with disabilities, 4) taboos around discussing sexual activity, and 5) limited opportunities for shared contraceptive decision-making.

conclusionsWomen with disabilities faced numerous barriers to contraceptive decision-making. Although the barriers differed somewhat by disability type, many barriers were consistent across groups, suggesting commonalities associated with the experience of disability in the context of contraceptive decision-making. Increased attention to the reproductive health needs of people with disabilities is important for improving health care equity and quality.

Indexed as

Contraceptive AgentsPersons with DisabilitiesAdolescentAdultContraceptionContraception BehaviorFemaleFocus GroupsHumansMiddle AgedPregnancyReproductive HealthYoung AdultContraceptive Agents

Identifiers

PMID35148954
PMCPMC9167240

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.