ArticleBMC geriatrics2022
A qualitative 5-country comparison of the perceived impacts of COVID-19 on people living with dementia and unpaid carers.
Article in BMC geriatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 18 citations in OpenAlex.
- The emotional cost of containment: a cross-sectional analysis of treatment effects among informal carers in South Asia during the COVID-19 pandemic.Global health action · 2025Article
- Who came to the rescue? Sources of informal support to older Europeans before, during and after the COVID-19 pandemic.Age and ageing · 2025Article
- Information and education for informal dementia caregivers: the Age-it project.Frontiers in public health · 2025Article
- Relational Solidarity and Conflicting Ethics in Dementia Care in Urban India.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- Patterns of psychotropic drug prescriptions and general practice consultations among community-dwelling older people with dementia during the first two years of the COVID-19 pandemic.BMC geriatrics · 2024Article
- Using digital technologies to facilitate social inclusion during the COVID-19 pandemic: Experiences of co-resident and non-co-resident family carers of people with dementia from DETERMIND-C19.International journal of geriatric psychiatry · 2023Article
- Stakeholder's experiences of living and caring in technology-rich supported living environments for tenants living with dementia.BMC geriatrics · 2023Article
- Addressing Suicide Risk in Patients Living With Dementia During the COVID-19 Pandemic and Beyond.The Gerontologist · 2022Article
- Family Caregiving during the COVID-19 Pandemic in Canada: A Mediation Analysis.International journal of environmental research and public health · 2022Article
- Pharmaceutical Treatment of People with Dementia during the SARS-CoV-2 Pandemic in Germany: Polypharmacy, Anticholinergic Medication, and Antidementia Medication.Dementia and geriatric cognitive disorders extraArticle
Corrections and comments
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Authors and funding
16 authors at 5 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEmerging evidence shows an impact of the COVID-19 pandemic on people living with dementia and informal carers, without any evidence-based global comparison to date. The aim of this international study was to explore and compare the perceived impact of COVID-19 and associated public health restrictions on the lives of people living with dementia and informal carers and access to dementia care across five countries.
methodsInformal carers and people living with dementia who were residing in the community in the UK, Australia, Italy, India, and Poland were interviewed remotely between April and December 2020. Participants were asked about their experiences of the pandemic and how restrictions have impacted on their lives and care. Transcripts were analysed by researchers in each country using inductive thematic analysis.
resultsFifteen people living with dementia and 111 informal carers participated across the five countries. Four themes emerged: (1) Limited access and support; (2) Technology and issues accessing remote support; (3) Emotional impact; and (4) Decline of cognitive and physical health reported by carers. Whilst variations were noted, the pandemic has indirectly affected people with dementia and carers across all five countries. The pandemic removed access to social support services and thus increased carer burden. Remote services were not always provided and were very limited in benefit and usability for those with dementia. As a result, carers appeared to notice reduced cognitive and physical health in people with dementia. Particular differences were noted between India and Poland vs. the UK, Italy, and Australia, with less impact on care provision in the former due to limited uptake of support services pre-pandemic based on cultural settings.
conclusionsThe pandemic has amplified dementia as a global public health problem, and people affected by the condition need support to better access vital support services to live well.
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