ArticleInnovation in aging2022
Family Caregivers in Rural Appalachia Caring for Older Relatives With Dementia: Predictors of Service Use.
Article in Innovation in aging, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Conceptualizing Family Caregivers' Use of Community Support Services: A Scoping Review.The Gerontologist · 2024Pooled it
- Utilization of home- and community-based services among rural family caregivers of persons with dementia: the role of the area deprivation index.Frontiers in public health · 2025Trial
- Differences in patient access to and utilization of caregiving services: a scoping review.BMC health services research · 2026Article
- Appalachian Home- and Community- Based Services for People Affected by Dementia.Online journal of rural nursing and health care : the official journal of the Rural Nurse Organization · 2026Article
- Unmet Needs and Factors Impacting Home- and Community-Based Service Use Among Rural Appalachian Caregivers of People With Alzheimer's and Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Gender differences in spousal caregiver strain and paid service use among dementia caregivers in rural Appalachia.Frontiers in public health · 2025Article
- Comparing Unmet Service Needs Between Rural and Urban Family Caregivers of People Living With Alzheimer's Disease and Related Dementias: A Multisite Study.The Gerontologist · 2024Article
- Dementia Care in Rural Appalachia: Multilevel Analysis of Individual- and County-Level Factors.The Gerontologist · 2024Article
- Family Caregivers' Management of Behavioral Expressions of Dementia.The Gerontologist · 2024Article
- Family Caregiving of Patients With Heart Failure and Vascular Dementia in Rural Appalachia: A Mixed-Methods Study.Western journal of nursing research · 2024Article
- Use of Caregiving Support Services Among Diverse Dementia Caregivers by Geographic Context.The Gerontologist · 2024Article
- From the Outgoing Editor-in-Chief ofInnovation in aging · 2024Article
- Place-based, intersectional variation in caregiving patterns and health outcomes among informal caregivers in the United States.Frontiers in public health · 2024Article
- Developing, implementing, and evaluating the visiting Neighbors' program in rural Appalachia: A quality improvement protocol.PloS one · 2024Article
- COVID-19 Vaccination Experiences of Family Caregivers of Persons Living with Dementia in Rural Appalachia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Extended Family Caregivers for Persons Living With Dementia.Journal of family nursing · 2022Article
- Dementia Family Caregiving in Rural Appalachia: A Sociocultural Model of Care Decisions and Service Use.The journals of gerontology. Series B, Psychological sciences and social sciences · 2022Article
- Dual Caregivers of Persons living with Dementia: The Added Stress of COVID-19 Pandemic.Gerontology & geriatric medicineArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
BACKGROUND AND
objectivesResidents of rural Appalachia tend to experience poorer health and greater economic distress than rural dwellers elsewhere in the United States. Although family is the first line of support for older adults needing care, it is unclear whether dementia caregivers in Appalachia assume these care responsibilities because of strong informal networks that support them in their caregiving role, underresourced formal services for persons with dementia, or culture-based reluctance to accept help from outsiders. This research examines how rural residents of Appalachia manage the care of relatives with dementia. RESEARCH DESIGN AND
methodsThe study was grounded in the Andersen Behavioral Model, supplemented with culturally relevant variables. Family caregivers from rural Appalachian counties in Virginia caring for community-dwelling relatives with dementia participated in a structured phone interview (
resultsApproximately half the sample utilized at least one support service and one personal service. Predisposing and need factors predicted the use of support services, whereas predisposing, need, and enabling factors predicted personal services. Caregivers who strongly identified with their cultural roots were less likely to use personal services unless they held a generally positive view of formal services. DISCUSSION AND IMPLICATIONS: Although the extent of needs and the caregiver's economic situation were essential influences on formal service utilization, the main drivers were the caregiver's identification with rural Appalachian culture and attitude toward services. Findings point to within-group heterogeneity that requires differential approaches to delivery of community-based services accounting for varying attitudes, preferences, and family resources.
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