Evidence map›Paper›PMID 35139808›Full record

ArticleBMC cancer2022

Perception of information to Swedish melanoma patients in routine clinical practice - a cross-sectional survey.

Helena Tufvesson Stiller, Rasmus Mikiver, Srinivas Uppugunduri, Marcus Schmitt-Egenolf

Abstract read
In one paragraph

Article in BMC cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Helena Tufvesson StillerDepartment of Public Health and Clinical Medicine, Dermatology, Umeå University, Umeå, Sweden. helena.tufvesson.stiller@umu.se.
Rasmus MikiverRegional Cancer Centre South East, Linköping, Sweden.
Srinivas UppugunduriRegional Cancer Centre South East, Linköping, Sweden.
Marcus Schmitt-EgenolfDepartment of Public Health and Clinical Medicine, Dermatology, Umeå University, Umeå, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundComprehensible, relevant information empowers patients, allowing them to take an active part in their care. We aim to investigate how Swedish melanoma patients perceive information provided in routine clinical practice and explore the correlation between satisfaction with information, symptoms and functioning scales, and quality of life.

methodsA cross-sectional study where EORTC QLQ-C30, EORTC QLQ-INFO25 and EQ-5D-3L questionnaires were sent to 1213 patients by post and 792 responded (65%).

resultsOnly 0.5% reported that they wished to have received less information. The amount of information received and the satisfaction with that information was age-dependent, where older patients reported receiving less information than younger patients. Middle-aged patients were more satisfied with the information compared to both younger and older patients. The perception of having received sufficient information correlated negatively with anxiety. Higher satisfaction with the information also correlated positively with scores for functioning scales and negatively with degree of symptoms. No difference was perceived in information levels between disease stage apart from the scale "information about other services", where patients with more severe disease reported receiving more information. Men and women reported equal satisfaction concerning the information received.

conclusionsPatients lack sufficient information and age affects the perception of it. It is of utmost importance to tailor the information to suit the individual needs of a given patient, as satisfaction with the information received correlates with the patient's well-being.

Indexed as

AgedAge FactorsAnxietyCross-Sectional StudiesFemaleHumansMaleMelanomaMiddle AgedPatient Acceptance of Health CarePatient Education as TopicPatient SatisfactionPerceptionPractice Patterns, Physicians'Quality of LifeSurveys and QuestionnairesCancerInformationMelanomaOncologyPatient reported outcome measuresQuality of life

Identifiers

PMID35139808
PMCPMC8829993

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.