Evidence map›Paper›PMID 35138011›Full record

ArticleHealth & social care in the community2022

COVID-19 and the Mental Capacity Act in care homes: Perspectives from capacity professionals.

Margot Kuylen, Aaron Wyllie, Vivek Bhatt, Emily Fitton, Sabine Michalowski, Wayne Martin

Abstract read
In one paragraph

Article in Health & social care in the community, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Margot KuylenEssex Autonomy Project, University of Essex, Colchester, UK.ORCID 0000-0001-5586-5456
Aaron WyllieEssex Autonomy Project, University of Essex, Colchester, UK.ORCID 0000-0001-7662-140X
Vivek BhattEssex Autonomy Project, University of Essex, Colchester, UK.ORCID 0000-0003-2335-1770
Emily FittonEssex Autonomy Project, University of Essex, Colchester, UK.ORCID 0000-0002-1391-3752
Sabine MichalowskiEssex Autonomy Project, University of Essex, Colchester, UK.ORCID 0000-0001-9593-6386
Wayne MartinEssex Autonomy Project, University of Essex, Colchester, UK.ORCID 0000-0002-3575-4510

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This study explores the experiences of professionals who worked with care home residents with impaired mental capacity in England and Wales during the COVID-19 pandemic. It explores (i) how competing risks were balanced and (ii) how the Mental Capacity Act (MCA) functioned in care homes under pandemic conditions, with particular focus on its associated Deprivations of Liberty Safeguards (DoLS) and Independent Mental Capacity Advocacy (IMCA) systems. Between March and May 2021, we held an online survey and five focus groups aimed at professionals who worked in or with care homes during the pandemic. The study explored issues pertaining to residents with impaired mental capacity, alongside several other topics on which we report elsewhere. For this paper, we filtered data to only include responses from 'capacity professionals'. The resulting sample comprised 120 (out of 266) survey participants and 18 (out of 22) focus group participants. We performed manifest content analysis on the filtered data and found that (1) participants reported a 'massive discrepancy' between the ways different care homes balanced the risk of COVID-19 infection with the risks associated with severe restrictions. (2) Some suggested this was due to vague guidance, as well as care home type and size. Participants told us the pandemic (3) obstructed smooth operation of statutory safeguards designed to protect residents' human rights and (4) resulted in confusion about the remit of the MCA during a public health crisis. Our findings raise concerns about the impact of pandemic-related measures upon care home residents with impaired mental capacity. We urge further exploration and analysis of (a) the variability and inconsistency of restrictions applied at care homes, (b) the strain placed on key safeguards associated with the MCA, (c) uncertainty about the remit of the MCA during a public health crisis and (d) the human rights implications hereof.

Indexed as

COVID-19EnglandHuman RightsHumansPandemicsUncertaintybest interestscare homesCOVID-19human rightsmental capacityMental Capacity Act (England and Wales) 2005 (MCA)public health

Identifiers

PMID35138011
PMCPMC9111706

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.